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Dr. Patrick Lynch grew up in a Lynch syndrome family...not one afflicted with Lynch syndrome but in one that was passionately dedicated toward research and treatment of those with Lynch syndrome. As the son of Dr. Henry Lynch, he was exposed to the long hours of research his father performed, trying to solve the mysteries of inherited cancer.  The family made great sacrifices on our behalf. Following graduation from high school, the very last thing Dr. Patrick Lynch wished to do was to follow in the footsteps of his parents, Henry and Jane Lynch, and enter into the medical field.  He knew how demanding it could be. As well, true to the tradition of his family, he had a passion of his own, that toward dedicating his life toward a career which would enhance the quality of life of others.  He chose to be an environmental attorney and attended law school. Following becoming disenchanted during a short career in environmental law, he spent a summer working with his father where developed the infectious passion of his parents in researching hereditary cancers. He determined to attend medical school, graduating from Creighton University School of Medicine in 1983 and completing an internship and residency at the University of Arkansas, in Medical Sciences. Following was participation in a clinical fellowship in Gastroenterology at Baylor College of Medicine, Houston, Texas.  Today, he can be found at MD Anderson, one of the largest and finest cancer research institutions in the world, as their top Lynch syndrome expert or in the Halls of the National Institute of Health, where he sits on the editing Board for their publications.   Dr. Lynch is a noted researcher, a medical treatment professional and an educator.  His contributions to the research and treatment of Lynch syndrome are invaluable.     We are extremely pleased to have him as a member of our Medical Advisory Board.  His candid and passionate manner and dedication toward those with Lynch syndrome is appreciated and we are very grateful to him for his dedication and efforts in improving the quality and longevity of life for those with Lynch syndrome. The extensive Curriculum Vitae for Dr. Patrick Lynch Publications of Dr. Patrick Lynch  
Saturday, 27 February 2010 | 2331 hits
Dr. Hans F.A. Vasen has dedicated himself toward the research of hereditary cancers, and most specifically to Lynch syndrome, for over twenty-five years.  He has held and present holds numerous positions on the Board of Directors of various organizations and national and international societies for hereditary cancers. The Administrative Director for the International Society for Gastrointestinal Hereditary Tumours (InSight) chairman of several national collaborative study groups and Editor-In Chief of Familial Cancer (Springer Publishers,) he began his career in Leiden, Holland. He joined the staff at the Department of Gastroenterology at the Leiden University Medical Center in 1985, as well as became the Medical Director of the Netherlands Foundation for the Detection of Hereditary Tumours.  Dr. Vasen qualified in General Internal Medicine from the University Medicl Center in Utrecht and completed his thesis entitled, "Screen for Hereditary Tumours" in 1989 at the University of Utrecht. Since, he has been involved in the development of guidelines which have set standards in the determination of probability of Lynch syndrome as well as published over 250 papers. He has long held a passion for inherited cancers, has dedicated his life toward the research of Lynch syndrme and has advaned the technology available to Lynch survivors and previvors dramatically, creating an enormous, positive impact upon our lives.  We are very grateful for such dedication, which has kept many of us alive and are honored to have him sit on the Medical Advisory Board. Research Papers    
Saturday, 27 February 2010 | 1798 hits
  The highest honor bestowed by The Ohio State University on its faculty was presented in 2004 to Dr. de la Chapelle, who initiated and built the University's Human Cancer Genetics Program after his arrival in 1997.   A member of the U.S. National Academy of Sciences, Dr. de la Chapelle is a professor in the OSU College of Medicine and Public Health's Department of Molecular Virology, Immunology and Medical Genetics.    He holds the Leonard J. Immke, Jr. and Charlotte L. Immke Chair of Cancer Research.  He also has won the two most prestigious awards in genetics:  the Mauro Baschirotto Award from the European Society of Human Genetics, and the William Allan Award from the American Society of Human Genetics. Dr. de la Chapelle's research focuses on the genetic predisposition to cancer and he had conducted considerable research into Lynch syndrome (HNPCC)  Dr. de la Chapelle was born in Helsinki, Finland on February 11, 1933.  In the 1950's, he served in the Finnish Army and following, began his education which lead to becoming one of the most accomplished and distinguished genetics experts in the world.  During his career, he has been honored for his distinguished accomplishments over thirty times and has been involved with dozens of Advisory Boards involving genetics.  He is one of the most esteemed genetics experts in the world.  We are extremely honored to have Dr. de la Chapelle as a member of our Medical Advisory Board and are very grateful to him for his efforts on behalf of Lynch syndrome survivors, previvors and families. Papers of Dr. De la Chapelle Introductory Speech for Dr. de la Chapelle - 2002
Saturday, 27 February 2010 | 1581 hits
Dr. Henry T. Lynch is a member of the LSI Executive Board of Directors as well as Chairman of the Medical Advisory Committee. In 1944, at only 16 years of age, Henry T. Lynch joined the United States Navy. He proceeded to serve in the European theater, the South Pacific battles and the Philippine liberation. Two years later, after receiving an honorable discharge he attended college, graduating from the University of Oklahoma in 1951. At the age of 24, he obtained his Masters degree in psychology from Denver University, then attended medical school, graduating from the University of Texas Medical Branch, in Galveston in 1960, after completing all the course work toward a PhD in Human genetics in Austin. It was while as a resident at the University of Nebrasa, Dr. Lynch first encountered individuals who had many family members who were affected of or died of cancers of which they, themselves, had been diagnosed. Due to his strong background in genetics, Dr. Lynch had the novel idea to look at cancer through a genetics perspective, postulating its root cause was hereditary rather than environmental, which was the school of thought of how all cancers were created. Dr. Lynch's studied the cancers for years and in 1970 applied for an NIH grant to study even further in depth. His research indicated there had to be a factor at work that created specific familial cancers. Nonetheless, the committee did not agree with him and thorough discounted the idea cancer could be hereditary. For the next twenty years, he applied for grants and was often rejected, however he continued his reeesearch with minimal funding and totally and passionately convinced he would one day be able to provide cancer can be hereditary. Never giving up, that day came and Dr. Lynch developed what are regarded as the cardinal principles of cancer genetics: early age of onset of the disease, specific pattern of multiple primary cancers and Mendalian patterns of inheritance in hundreds of extended families worldwide. Dr. Lynch's publications number more than 650 journal articles and more than a dozen books related to the diagnosis, prevention, counseling and treatment of hereditary disorders, primarily cancer. He serves on the editorial board of Anticancer Research-International Journal of Cancer Research and Treatment, advisory boards of Critical Reviews in Oncogenesis and the Journal of Tumor Marker Oncology. Dr. Lynch has held positions of leadership within major medical facilities and has been very involved in organizations and activities involving hereditary cancer, including being a member of the editorial board of the Journal of Tumor Marker Oncology, Anti-Cancer Research -International Journal of Cancer Research and Treatment and American Journal of Medical Genetics. Dr. Lynch has long advocated the genetics issue was a family issue and recognized the many needs of families with Lynch syndrome, both physically and psychologically. He envisioned the core of the diagnosis and treatment for this issue to be the family practitioner as the gateway into the network for care. He has envisioned cancer education in high school and arged the case for the need for genetic counselors to work with families and provide necessary information and resources families need to make informed choices. As a result of Dr. Lynch's efforts, many of us are alive today and we are eternally grateful to him for his dogged perseverance, his dedication toward Lynch syndrme research and the technological avancement which has improved the quality of life and its longevity for future generations. We intend to further his mission to make his dreams come true for the benefit of many. Dr. Henry T. Lynch has been involved in almost 700 studies involving inherited cancers.
Saturday, 27 February 2010 | 1688 hits
Dr. Clement R. Boland, known as "Rick " Boland, brings to the Lynch Syndrome International Medical Advisory Board an extremely wide perspective of Lynch syndrome--that of a physician and researcher and that of living within a family that has sustained inherited cancer. Born on October 19, 1947 and growing up in Endwell, New York, he went on to graduate from Notre Dame University and, as his father, pursue medicine, graduating from the Yale School of Medicine in 1973. Dr. Boland was one of the very first early researchers of Lynch syndrome writing his medical degree thesis on inherited cancer in 1972, and as with Dr. Lynch, remained persistent in research of families with inherited cancers despite popular medical opinion, at that time, that cancer was not inherited. At that time, Dr. Boland contacted Dr. Lynch, who one year earlier, had published a story in "Cancer" and described a family very much like Dr. Boland's. The rest is history and as a result many lives have been saved as a result of his dedication, tenacity and passionate research. We are extremely fortunate to have Dr. Boland on our Medical Advisory Board. He is open and has a keen understanding of Lynch syndrome survivors and Lynch syndrome families, as well as a very down to earth, effective form of communication in relaying information to individuals without medical backgrounds. Besides being a terrific guy, he's a great researcher and a wonderful doctor. We are truly blessed and owe Dr. Boland a debt of gratitude for the contributions he has made which have contributed to sustaining our lives. More about Dr. Boland Publications by Dr. Boland
Saturday, 27 February 2010 | 1374 hits
  MISSION STATEMENT The primary mission of Lynch Syndrome International (LSI) is to serve our global communities by focusing on providing support for individuals afflicted with Lynch syndrome, creating public awareness of the syndrome, educating members of the general public and health care professionals and providing support for Lynch syndrome research endeavors. LSI, an all volunteer organization, is founded and governed by Lynch syndrome survivors, their families, and health care professionals who specialize in Lynch syndrome. If diagnosed early, we believe Lynch syndrome survivors have favorable outcomes which enhance survival, the longevity and quality of life as well as the emotional well-being of the afflicted. With the provisions of knowledge, caring and respect for those living with Lynch syndrome, coupled with a common theme of a prevalent positive attitude, we can be change agents, enhancing hope and survivability, impacting the life of countless thousands of people throughout our world. SCIENTIFIC ADVISORY BOARD Henry T. Lynch, MD Chairman -Founder of Lynch Syndrome, Northshore University Healthcare System, Creighton University Cancer Center, Omaha, Nebraska Albert de Chapelle, MD Ohio State University, Human Cancer Genetics Program, Columbus, Ohio C. Richard Boland, MD -Baylor Center University Medical Center, Dallas, Texas - American Gastroenterological Association Patrick Lynch, MD -University of Texas, MD Anderson Cancer Center, Houston, Texas Jane Green, PhD Memorial University of Newfoundland, St John's, Newfoundland, Canada Dawna Gilchrist, MD -University of Alberta, Alberta, Canada Hans Vasen, MD -Leiden University Medical Center, Leiden, Netherlands and the Netherlands Foundation of the Detection of Hereditary Toumours Stephen Lanspa, MD -Creighton University, Omaha, Nebraska   EXECUTIVE BOARD We are pleased to announce the following Board of Directors of Lynch Syndrome International, for 2013-2014, which represent survivors, previvors, caretakers, medical professionals and researchers of Lynch syndrome.  Lynch Syndrome International Directors are working directors and actively direct and organize events within Lynch Syndrome International.  All indviduals involved with the organization are volunteers and receive no compensation for their benevolence and countless hours of effort. We are very grateful for their contributions to this all volunteer organization. Linda Bruzzone – President/Executive Director  Operations/Fundraising Barbara Fabiani – Vice President Secretary   Operations/Fundraising Dave Wortman – Treasurer     Financial Oversight Susan Olson – Brentwood, California/Survivor  Young Previvors and Survivors Liaison Beth Fairbank – Brisbane, Australia /Previvor    Australia Liaison Todd Neil – Winnepeg, Canada /Previvor   Canada Liaison Wolfram Nolte- Germany /Survivor    European and Germany Liaison Judith Ruggiero –  Vacaville, California /Previvor   Public Policy Liaison John Nelson – Las Vegas, Nevada/Survivor  Native American Tribal Liaison Michelle Miller, LCSW – Denver, Colorado /Survivor Bill Harb, MD – Nashville, Tennessee / Medical Provider  (Liaison With Medical and Research Organizations) Cristi Radford – Sarasota, Florida/Genetic Counselor (Chairs Medical Professional and Patient Education) Carrie Snyder - Omaha, Nebraska/RN-Genetic Counselor (Chairs Medical Curriculum-Research)   WEBSITE SUPPORT David Wakefield, Webmaster   ENDURANCE COORDINATOR Meg Davis – Endurance Coordinator   CONTACT US Lynch Syndrome International 3650 South Pointe Circle  Suite 205-9 Laughlin, Nevada  89029 Telephone: 702-298-3911 Please do not hesitate to contact us with any questions you may have. REGULATORY  INFORMATION On 7/1/2009, Lynch Syndrome International was incorporated as a not for profit organization within the State of California and is registered with the Office of the California Secretary of State. Lynch Syndrome International, Inc. has been granted 501(c)(3) status as a not for profit, tax-exempt charity by the United States Government, Internal Revenue Service. Lynch Syndrome International, Inc. has been granted tax exempt status by the State of California, Franchise Tax Board.  It is also listed, in accordance to California State law with the Office of the California State Attorney General, Charitable Trusts Division and registered with the California State Board of Equalization and California State Franchise Tax Board.   SITE CONTENT This website is developed and maintained by Lynch Syndrome International.  All medical information on this site is supported by recent studies and specific source information is linked to the direct study. The specific section for professionals is reviewed by medical professionals and information is sourced with the specific studies.  Within the section for survivors, the information has been compiled by survivors and, in some cases, in collaboration with experts.  As well, specific information has been sourced.  If question arises regarding information, please contact The website of Lynch Syndrome International is Honcode Verified and reviewed for certification by Honcode for meeting trustworthy health information.   ADVERTISING At this point, Lynch Syndrome International is not offering advertising opportunities upon the website, however, in the future, following Board of Directors approval and development of an ethical advertising policy, advertising may be available and utilized upon this site.   PRIVACY We at LSI respect your privacy.  We do not collect, distribute or display personal identifiable information on visitors to this site. In the absence of a signed waiver, any articles, tips or submissions will be credited to the senders initials only. From time to time, we may have a member of the media requesting an interview with a Lynch syndrome Survivor, Previvor or with a health care professional with expertise in Lynch syndrome. You may be assured your personal identifying information or contact information will not be provided and in that event, we would contact you and upon your agreement to participate, would respond directly to the request. We do not maintain a bulletin board or blog on this site however do have an organizational support and information site on We are not responsible for any content placed upon the Facebook site or have any control over the privacy of the identities and contact information for individuals.   DISCLAIMER The content upon the website of Lynch Syndrome International is for informational purposes only.  It is not intended to replace professional medical opinion or advice. We strongly recommend our readers seek the advice of their physicians or otherwise qualified healthcare professionals with any questions they may have about any condition. It is not the intent of this organization for persons to rely upon information on this site for diagnosis or treatment of any condition.  We strongly recommend our readers seek and utilize the services of an expert, qualified healthcare professional for consideration of any diagnosis or treatment of any condition. We do not endorse any treatments, brands or manufacturers of any materials used for diagnosis or treatment of any condition. Any opinions written upon any of the pages on this site are the opinions of the writers and not those of Lynch Syndrome International.  Reliance upon anything written by any person associated with Lynch Syndrome International and/or within this site is   solely at your own risk. Due to the nature of the cancers inflicted by Lynch syndrome, some subject matter within the site may be graphic and to some, considered offensive.  Access to this material is at your own risk. All matter on this site is subject to United States and international copyright laws.  Copying and/or reproduction of this material is by specific, written permission only.     This site complies with the HONcode standard for trustworthy health information:  verify here.   Search only trustworthy HONcode health websites: Modified:  3/12/2014 - changed LSI address & tel      
Monday, 13 May 2013 | 22140 hits

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