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Dr. Patrick Lynch grew up in a Lynch syndrome family...not one afflicted with Lynch syndrome but in one that was passionately dedicated toward research and treatment of those with Lynch syndrome. As the son of Dr. Henry Lynch, he was exposed to the long hours of research his father performed, trying to solve the mysteries of inherited cancer.  The family made great sacrifices on our behalf. Following graduation from high school, the very last thing Dr. Patrick Lynch wished to do was to follow in the footsteps of his parents, Henry and Jane Lynch, and enter into the medical field.  He knew how demanding it could be. As well, true to the tradition of his family, he had a passion of his own, that toward dedicating his life toward a career which would enhance the quality of life of others.  He chose to be an environmental attorney and attended law school. Following becoming disenchanted during a short career in environmental law, he spent a summer working with his father where developed the infectious passion of his parents in researching hereditary cancers. He determined to attend medical school, graduating from Creighton University School of Medicine in 1983 and completing an internship and residency at the University of Arkansas, in Medical Sciences. Following was participation in a clinical fellowship in Gastroenterology at Baylor College of Medicine, Houston, Texas.  Today, he can be found at MD Anderson, one of the largest and finest cancer research institutions in the world, as their top Lynch syndrome expert or in the Halls of the National Institute of Health, where he sits on the editing Board for their publications.   Dr. Lynch is a noted researcher, a medical treatment professional and an educator.  His contributions to the research and treatment of Lynch syndrome are invaluable.     We are extremely pleased to have him as a member of our Medical Advisory Board.  His candid and passionate manner and dedication toward those with Lynch syndrome is appreciated and we are very grateful to him for his dedication and efforts in improving the quality and longevity of life for those with Lynch syndrome. The extensive Curriculum Vitae for Dr. Patrick Lynch Publications of Dr. Patrick Lynch  
Saturday, 27 February 2010 | 2323 hits
Dr. Hans F.A. Vasen has dedicated himself toward the research of hereditary cancers, and most specifically to Lynch syndrome, for over twenty-five years.  He has held and present holds numerous positions on the Board of Directors of various organizations and national and international societies for hereditary cancers. The Administrative Director for the International Society for Gastrointestinal Hereditary Tumours (InSight) chairman of several national collaborative study groups and Editor-In Chief of Familial Cancer (Springer Publishers,) he began his career in Leiden, Holland. He joined the staff at the Department of Gastroenterology at the Leiden University Medical Center in 1985, as well as became the Medical Director of the Netherlands Foundation for the Detection of Hereditary Tumours.  Dr. Vasen qualified in General Internal Medicine from the University Medicl Center in Utrecht and completed his thesis entitled, "Screen for Hereditary Tumours" in 1989 at the University of Utrecht. Since, he has been involved in the development of guidelines which have set standards in the determination of probability of Lynch syndrome as well as published over 250 papers. He has long held a passion for inherited cancers, has dedicated his life toward the research of Lynch syndrme and has advaned the technology available to Lynch survivors and previvors dramatically, creating an enormous, positive impact upon our lives.  We are very grateful for such dedication, which has kept many of us alive and are honored to have him sit on the Medical Advisory Board. Research Papers    
Saturday, 27 February 2010 | 1791 hits
  The highest honor bestowed by The Ohio State University on its faculty was presented in 2004 to Dr. de la Chapelle, who initiated and built the University's Human Cancer Genetics Program after his arrival in 1997.   A member of the U.S. National Academy of Sciences, Dr. de la Chapelle is a professor in the OSU College of Medicine and Public Health's Department of Molecular Virology, Immunology and Medical Genetics.    He holds the Leonard J. Immke, Jr. and Charlotte L. Immke Chair of Cancer Research.  He also has won the two most prestigious awards in genetics:  the Mauro Baschirotto Award from the European Society of Human Genetics, and the William Allan Award from the American Society of Human Genetics. Dr. de la Chapelle's research focuses on the genetic predisposition to cancer and he had conducted considerable research into Lynch syndrome (HNPCC)  Dr. de la Chapelle was born in Helsinki, Finland on February 11, 1933.  In the 1950's, he served in the Finnish Army and following, began his education which lead to becoming one of the most accomplished and distinguished genetics experts in the world.  During his career, he has been honored for his distinguished accomplishments over thirty times and has been involved with dozens of Advisory Boards involving genetics.  He is one of the most esteemed genetics experts in the world.  We are extremely honored to have Dr. de la Chapelle as a member of our Medical Advisory Board and are very grateful to him for his efforts on behalf of Lynch syndrome survivors, previvors and families. Papers of Dr. De la Chapelle Introductory Speech for Dr. de la Chapelle - 2002
Saturday, 27 February 2010 | 1577 hits
Dr. Henry T. Lynch is a member of the LSI Executive Board of Directors as well as Chairman of the Medical Advisory Committee. In 1944, at only 16 years of age, Henry T. Lynch joined the United States Navy. He proceeded to serve in the European theater, the South Pacific battles and the Philippine liberation. Two years later, after receiving an honorable discharge he attended college, graduating from the University of Oklahoma in 1951. At the age of 24, he obtained his Masters degree in psychology from Denver University, then attended medical school, graduating from the University of Texas Medical Branch, in Galveston in 1960, after completing all the course work toward a PhD in Human genetics in Austin. It was while as a resident at the University of Nebrasa, Dr. Lynch first encountered individuals who had many family members who were affected of or died of cancers of which they, themselves, had been diagnosed. Due to his strong background in genetics, Dr. Lynch had the novel idea to look at cancer through a genetics perspective, postulating its root cause was hereditary rather than environmental, which was the school of thought of how all cancers were created. Dr. Lynch's studied the cancers for years and in 1970 applied for an NIH grant to study even further in depth. His research indicated there had to be a factor at work that created specific familial cancers. Nonetheless, the committee did not agree with him and thorough discounted the idea cancer could be hereditary. For the next twenty years, he applied for grants and was often rejected, however he continued his reeesearch with minimal funding and totally and passionately convinced he would one day be able to provide cancer can be hereditary. Never giving up, that day came and Dr. Lynch developed what are regarded as the cardinal principles of cancer genetics: early age of onset of the disease, specific pattern of multiple primary cancers and Mendalian patterns of inheritance in hundreds of extended families worldwide. Dr. Lynch's publications number more than 650 journal articles and more than a dozen books related to the diagnosis, prevention, counseling and treatment of hereditary disorders, primarily cancer. He serves on the editorial board of Anticancer Research-International Journal of Cancer Research and Treatment, advisory boards of Critical Reviews in Oncogenesis and the Journal of Tumor Marker Oncology. Dr. Lynch has held positions of leadership within major medical facilities and has been very involved in organizations and activities involving hereditary cancer, including being a member of the editorial board of the Journal of Tumor Marker Oncology, Anti-Cancer Research -International Journal of Cancer Research and Treatment and American Journal of Medical Genetics. Dr. Lynch has long advocated the genetics issue was a family issue and recognized the many needs of families with Lynch syndrome, both physically and psychologically. He envisioned the core of the diagnosis and treatment for this issue to be the family practitioner as the gateway into the network for care. He has envisioned cancer education in high school and arged the case for the need for genetic counselors to work with families and provide necessary information and resources families need to make informed choices. As a result of Dr. Lynch's efforts, many of us are alive today and we are eternally grateful to him for his dogged perseverance, his dedication toward Lynch syndrme research and the technological avancement which has improved the quality of life and its longevity for future generations. We intend to further his mission to make his dreams come true for the benefit of many. Dr. Henry T. Lynch has been involved in almost 700 studies involving inherited cancers.
Saturday, 27 February 2010 | 1684 hits
Photo - Courtesy of Drew Herron REGIONAL REPRESENTATIVES AND THE LSI BUDDY PROGRAM Lynch Syndrome International is an all volunteer organization with NO person, within the organization, personally compensated for their good efforts. The Directors of LSI are all Survivors, Previvors, Medical Professionals and those who care for us and who have a special knowledge and experience with Lynch syndrome. The heart of LSI is within our global regions and within the regional representatives and dozens of LSI volunteers as they operate the grass roots public awareness programs, learn of the resources available in the area for those with Lynch syndrome and provide public awareness to members of the community and local support to those with Lynch syndrome. Our representatives, when available, do travel on a regional basis to conferences, exhibitions and public events and do speak locally on behalf of public awareness for Lynch syndrome. Lynch Syndrome International volunteers come from all walks of life, come in all ages, all colors and some speak various different languages. exactly the same as the diverse populations in our communities as Lynch syndrome is not discriminatory. It doesn't care if you are black, brown, yellow, red or white, or male or female, or a specific religion or sexual preference. It prefers the young but will strike at any age...therefore, we have developed a network of Moms, Dads, students, caretakers and everyday people with Lynch syndrome or who are familiar with Lynch syndrome to be available to be there during time of need. Lynch Syndrome International offers "Buddy to Buddy" networking whereupon individuals at high risk for Lynch syndrome can meet and interact with others who are also at high risk. Our regional representatives provide support for individuals who have Lynch syndrome through the "Buddy to Buddy" program. To make certain you are immediately contacted by someone who shares your interests and your background, contact us via email at or by phone at 707-689-5089. Only those who have had a personal experience with Lynch syndrome can truly understand the feelings individuals go through with the initial diagnosis of Lynch syndrome and/or the cancers of Lynch syndrome. Our mission is to be here for one another.
Saturday, 26 March 2011 | 386 hits
A BIG SUCCESS! LYNCH SYNDROME PUBLIC AWARENESS DAY ON MARCH 22, 2012 Many involved with Lynch syndrome from survivors to previvors, to caretakers, to medical professionals, to researchers, institutions, elected leaders and community cancer advocates and organizations stood together to make this the biggest day ever! Thirty-five governors of the United States recognized or proclaimed Lynch Syndrome Public Awareness Day. This was so very important as no other cancer condition is so very treatable as most the cancers of Lynch syndrome and in doing so, we believe these actions of public awareness will not only assist in decreasing the incidents of cancers in those with Lynch syndrome, but will protect families and will save lives. Major institutions such as Sloan Kettering and Northshore Health Systems to the smaller institutions of Sarasota Memorial Hospital, Sutter Health Systems in California and many others celebrated this day with public awareness programs. Congressional Representative Ed Towns from Pennsylvania read information about Lynch syndrome into the Congressional Record, educating our elected representatives and Congressional member John Garamendi awarded Lynch Syndrome International with an award for our efforts. Tens of thousands of brochures were distributed by volunteers working from a grass roots level, to medical providers and members of the general public. Across the nation, individuals wore blue commemorating the day as over a hundred thousand radio spots played information on Lynch syndrome and dozens of newspaper articles and internet blogs addressed Lynch syndrome. Individual medical offices displayed posters and passed out was the single most biggest day in the history of Lynch syndrome! And to its sucess, we are extremely grateful to the thousands of volunteers who stood up and made this day possible! TOGETHER, WE CAN SAVE LIVES AND PROTECT FAMILIES FROM THE DEVASTATING CANCERS OF LYNCH SYNDROME. WE CAN AND WILL MAKE AN INCREDIBLE DIFFERENCE IN THE LIVES OF TENS OF THOUSANDS OF PEOPLE!
Thursday, 22 March 2012 | 827 hits
A TRIBUTE TO DR. HENRY T. LYNCH Lynch syndrome is about families and if anyone understands that, it is Dr. Henry T. Lynch, the founder. Today, many of us with Lynch syndrome exist, only as a result of this wonderful, caring man and his family who have given and sacrificed so very much so we and our families may live. Words can never express our gratitude but hopefully our global actions will. Our mission is to carry his mission forward for the generations to come--to work together as a team ---- survivors, previvors, medical professionals, genetics professionals, research professionals, governmental agencies, educational facilities, communities-- to find the over 600,000 individuals of which only 5% are diagnosed and to protect families and save lives from devastating cancers and to do so working within the true tradition of Dr. Henry Lynch. With Immense Gratitude For All He Has Done So Our Families May Live--- Team LSI Often referred to as the father of hereditary cancer, Lynch is a pioneer in the study of cancer and genetics. Part of the international team that discovered the location of one of two known genes involved in hereditary breast cancer, Lynch and his early cancer research significantly influenced how physicians and researchers treat and study hereditary cancers today. Lynch’s groundbreaking research in the 1960s into the medical history data of two extended families led him to the discovery of cancer family syndrome (CFS), also known as hereditary nonpolyposis colorectal cancer (HNPCC) or Lynch syndrome. Though not an actual cancer, Lynch syndrome strongly predisposes people who have this inherited defect to develop colorectal cancer as well as several other types of cancer. Lynch’s use of statistics to prove the genetic link to certain cancer types was unique from other researchers at the time. Born in Lawrence, Massachusetts on January 4, 1928, Lynch grew up in New York City. He joined the U.S. Navy at 16 using a falsified birth certificate and served in Europe, the Philippines and as a gunner on a marine ship in the Pacific during the Second World War. After being discharged from the Navy in 1946, Lynch stepped into the ring and became a professional boxer. He earned the nickname “Hammerin’ Hank” while boxing in upper New York State and in the San Francisco area. Lynch received his bachelor’s degree from the University of Oklahoma in 1951 and went on to earn his master’s degree in clinical psychology from the University of Denver in 1952. He received his doctorate degree in human genetics at the University of Texas, Austin, before completing medical school at the University of Texas, Galveston, in 1960. Lynch then interned at St. Mary's Hospital in Evansville, Ind. and completed his residency in internal medicine at the University of Nebraska College of Medicine in Omaha, Neb. Lynch was an assistant professor at the University of Texas M.D. Anderson Hospital and Tumor Institute in Houston prior to joining the Creighton University School of Medicine faculty in 1967. In 1984, Lynch established Creighton University's Hereditary Cancer Prevention Clinic, an interdisciplinary clinic that provides information and services related to hereditary cancers. He is currently chairman of Preventive Medicine at Creighton University, and the holder of the Charles F. and Mary C. Heider Endowed Chair in Cancer Research.
Wednesday, 01 August 2012 | 7065 hits
HELP WANTED Big hearted, strong willed,courageous individuals to help LSI achieve our mission or protecting families and saving lives! Minimum qualifications: Must have passion, warmth, commitment, loyalty and dedication for active, busy, exciting position. Work from your own home. Set your own hours. Up and coming organization with great coworkers. Occasional travel ! Meet new people. Terrific pay. What, no pay? Yep, no pay...EVERYONE involved with Lynch Syndrome International is a volunteer, from our Executive Board, to our Scientific Medical Board, to our Executive Director, to our Project Managers, to our Regional Representatives. We are a true, not for profit, 501(c)(3) TOTALLY volunteer organization and propel forward on people power, fueled by passion and commitment to protect families and save lives. We are seeking volunteers who are willing to fill the following volunteer positions and/or assist with one, two or even all of the following tasks: Regional Grassroots Coordinators Manage LSI Operations in your region: Facilitate the LSI Buddy to Buddy Program Facilitate Regional LSI Support Groups Arrange and Organize Relay for Life Events Conduct Regional Public Awareness Campaigns for LSI Occasional travel to regional conferences Organize Regional Fundraising Events Report Events and Activities for Newsletter Internet Communications Coordinator who, by email, will contact public agencies, organizations, medical centers, etc., to link to our website and maintain content on their sites about Lynch syndrome. Thousands of Volunteers who will Act as buddies to newly diagnosed previvors and survivors Work with LSI at four annual public awareness events Open up your hearts and your souls to journalists for public awareness events Participate in educational outreach events such as Relay for Life and local conventions. Distribute LSI publications to medical offices and other targeted locations. Participate in Relay for Life Events, promoting Lynch syndrome and hereditary cancers Work at local events, educating others about Lynch syndrome Participate in fundraising efforts for LSI Utilize life and learned skills to enhance the organization, including assisting in writing grants, soliciting organizations for fundraising, making radio spots, filming television ads, writing articles for newspapers, conducting studies of insurance company coverage, medical physicians volunteering services for genetic testing and for screening, researching and providing local resources for individuals with cancers, etc. There is no end to what one can do to volunteer. Lobby local lawmakers for badly needed changes Engage in organized letter writing campaigns to change guidelines and enhance screening measures. Raise funding for research Get involved in clinical trials, providing needed information to protect families and save future generations. We realize, as Survivors, sometimes the energy simply isn't as robust as our hearts and our passions. We understand, admire and respect the priorities of family, friends and simply living life to the fullest, as it should please don't volunteer more than what you can comfortably offer, without jeopardizing any other commitment in your life. There are many, many survivors who are working as hard as forty hours a week and many who can only do several hours a month. That is fine...we can all contribute in our own way...WE are the ones who will make the needed changes! Between all of us, we should be able to move mountains...and win battles...on our life and one family at a time... Please contact us in order to volunteer!
Monday, 15 February 2010 | 13925 hits
Wednesday, 08 August 2012 | 543 hits
JOIN TEAM AUSTRALIA! and the tremendous public awareness venture they sponsored at the Brisbane Australia Relay for Life event. They are rocking and sure do have a lot of fun!!! If you wish to be involved with LSI Australia, simply contact Beth at . Yep, I would say she was "blue!" Lynch syndrome blue!!!!! And she was sure had fun! Boy, those Aussies sure know how to LIVE!!!!! Just look at all those beautiful families! If you look close, you probably know them! In fact, they spent many years with us in our living rooms and upon our television sets. Heck, we grew up together, learning family was the most important aspect of life and the root of our existence. From them, we learned just what family means and how very special it is. And when you think about it, despite coming in different sizes, colors, religions and cultures, our families are not very different from one another...we have all the same hopes and fears and dreams for our children...that they will be happy and safe and healthy... So, who couldn't fall in love with this great group of Lynch syndrome families? These folks are making a difference down under by standing up and making their lives count... Finally...not only did they play together, but memorialized those family members not present -- who left this world far before their time. Many have sustained tragic losses of those they loved to cancer...however, those of us with Lynch syndrome, most likely, have become masters in memorializing the many members of our individual families, whom we have loved and who left us, needlessly--especially since there does exist a cost effective solution which is almost the equivalent to a cure...hopefully someone will get the clue and across the board testing will become an everyday part of life, so we and our families can live...huh? Each lit bag represents a loved one lost to cancer. This powerfully indicates the seriousness of Lynch syndrome, with more lit bags than survivors and previvors and their family members. TEAM AUSTRALIA! WE LOVE YOU AND YOUR PASSION!
Friday, 03 August 2012 | 510 hits

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