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Dr. Hans F.A. Vasen has dedicated himself toward the research of hereditary cancers, and most specifically to Lynch syndrome, for over twenty-five years.  He has held and present holds numerous positions on the Board of Directors of various organizations and national and international societies for hereditary cancers. The Administrative Director for the International Society for Gastrointestinal Hereditary Tumours (InSight) chairman of several national collaborative study groups and Editor-In Chief of Familial Cancer (Springer Publishers,) he began his career in Leiden, Holland. He joined the staff at the Department of Gastroenterology at the Leiden University Medical Center in 1985, as well as became the Medical Director of the Netherlands Foundation for the Detection of Hereditary Tumours.  Dr. Vasen qualified in General Internal Medicine from the University Medicl Center in Utrecht and completed his thesis entitled, "Screen for Hereditary Tumours" in 1989 at the University of Utrecht. Since, he has been involved in the development of guidelines which have set standards in the determination of probability of Lynch syndrome as well as published over 250 papers. He has long held a passion for inherited cancers, has dedicated his life toward the research of Lynch syndrme and has advaned the technology available to Lynch survivors and previvors dramatically, creating an enormous, positive impact upon our lives.  We are very grateful for such dedication, which has kept many of us alive and are honored to have him sit on the Medical Advisory Board. Research Papers    
Saturday, 27 February 2010 | 1799 hits
HELP WANTED Big hearted, strong willed,courageous individuals to help LSI achieve our mission or protecting families and saving lives! Minimum qualifications: Must have passion, warmth, commitment, loyalty and dedication for active, busy, exciting position. Work from your own home. Set your own hours. Up and coming organization with great coworkers. Occasional travel ! Meet new people. Terrific Benefits...no pay. What, no pay? Yep, no pay...EVERYONE involved with Lynch Syndrome International is a volunteer, from our Executive Board, to our Scientific Medical Board, to our Executive Director, to our Project Managers, to our Regional Representatives. We are a true, not for profit, 501(c)(3) TOTALLY volunteer organization and propel forward on people power, fueled by passion and commitment to protect families and save lives. We are seeking volunteers who are willing to fill the following volunteer positions and/or assist with one, two or even all of the following tasks: Regional Grassroots Coordinators Manage LSI Operations in your region: Facilitate the LSI Buddy to Buddy Program Facilitate Regional LSI Support Groups Arrange and Organize Relay for Life Events Conduct Regional Public Awareness Campaigns for LSI Occasional travel to regional conferences Organize Regional Fundraising Events Report Events and Activities for Newsletter Internet Communications Coordinator who, by email, will contact public agencies, organizations, medical centers, etc., to link to our website and maintain content on their sites about Lynch syndrome. Thousands of Volunteers who will Act as buddies to newly diagnosed previvors and survivors Work with LSI at four annual public awareness events Open up your hearts and your souls to journalists for public awareness events Participate in educational outreach events such as Relay for Life and local conventions. Distribute LSI publications to medical offices and other targeted locations. Participate in Relay for Life Events, promoting Lynch syndrome and hereditary cancers Work at local events, educating others about Lynch syndrome Participate in fundraising efforts for LSI Utilize life and learned skills to enhance the organization, including assisting in writing grants, soliciting organizations for fundraising, making radio spots, filming television ads, writing articles for newspapers, conducting studies of insurance company coverage, medical physicians volunteering services for genetic testing and for screening, researching and providing local resources for individuals with cancers, etc. There is no end to what one can do to volunteer. Lobby local lawmakers for badly needed changes Engage in organized letter writing campaigns to change guidelines and enhance screening measures. Raise funding for research Get involved in clinical trials, providing needed information to protect families and save future generations. We realize, as Survivors, sometimes the energy simply isn't as robust as our hearts and our passions. We understand, admire and respect the priorities of family, friends and simply living life to the fullest, as it should be...so please don't volunteer more than what you can comfortably offer, without jeopardizing any other commitment in your life. There are many, many survivors who are working as hard as forty hours a week and many who can only do several hours a month. That is fine...we can all contribute in our own way...WE are the ones who will make the needed changes! Between all of us, we should be able to move mountains...and win battles...on our terms...one life and one family at a time... Please contact us in order to volunteer!
Monday, 15 February 2010 | 13929 hits
Dr. Henry T. Lynch is a member of the LSI Executive Board of Directors as well as Chairman of the Medical Advisory Committee. In 1944, at only 16 years of age, Henry T. Lynch joined the United States Navy. He proceeded to serve in the European theater, the South Pacific battles and the Philippine liberation. Two years later, after receiving an honorable discharge he attended college, graduating from the University of Oklahoma in 1951. At the age of 24, he obtained his Masters degree in psychology from Denver University, then attended medical school, graduating from the University of Texas Medical Branch, in Galveston in 1960, after completing all the course work toward a PhD in Human genetics in Austin. It was while as a resident at the University of Nebrasa, Dr. Lynch first encountered individuals who had many family members who were affected of or died of cancers of which they, themselves, had been diagnosed. Due to his strong background in genetics, Dr. Lynch had the novel idea to look at cancer through a genetics perspective, postulating its root cause was hereditary rather than environmental, which was the school of thought of how all cancers were created. Dr. Lynch's studied the cancers for years and in 1970 applied for an NIH grant to study even further in depth. His research indicated there had to be a factor at work that created specific familial cancers. Nonetheless, the committee did not agree with him and thorough discounted the idea cancer could be hereditary. For the next twenty years, he applied for grants and was often rejected, however he continued his reeesearch with minimal funding and totally and passionately convinced he would one day be able to provide cancer can be hereditary. Never giving up, that day came and Dr. Lynch developed what are regarded as the cardinal principles of cancer genetics: early age of onset of the disease, specific pattern of multiple primary cancers and Mendalian patterns of inheritance in hundreds of extended families worldwide. Dr. Lynch's publications number more than 650 journal articles and more than a dozen books related to the diagnosis, prevention, counseling and treatment of hereditary disorders, primarily cancer. He serves on the editorial board of Anticancer Research-International Journal of Cancer Research and Treatment, advisory boards of Critical Reviews in Oncogenesis and the Journal of Tumor Marker Oncology. Dr. Lynch has held positions of leadership within major medical facilities and has been very involved in organizations and activities involving hereditary cancer, including being a member of the editorial board of the Journal of Tumor Marker Oncology, Anti-Cancer Research -International Journal of Cancer Research and Treatment and American Journal of Medical Genetics. Dr. Lynch has long advocated the genetics issue was a family issue and recognized the many needs of families with Lynch syndrome, both physically and psychologically. He envisioned the core of the diagnosis and treatment for this issue to be the family practitioner as the gateway into the network for care. He has envisioned cancer education in high school and arged the case for the need for genetic counselors to work with families and provide necessary information and resources families need to make informed choices. As a result of Dr. Lynch's efforts, many of us are alive today and we are eternally grateful to him for his dogged perseverance, his dedication toward Lynch syndrme research and the technological avancement which has improved the quality of life and its longevity for future generations. We intend to further his mission to make his dreams come true for the benefit of many. Dr. Henry T. Lynch has been involved in almost 700 studies involving inherited cancers.
Saturday, 27 February 2010 | 1691 hits
Friday, 15 February 2013 | 10155 hits

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