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121. New Mexico
NEW MEXICO Affordable Care Plan - Health Care Insurance for Individuals With Preexisting Conditions NM Colorectal Cancer Program, 5301 Central Ave. N.E., #800, Albuquerque, NM 87108 505-841-5860 New Mexico Colorectal Cancer Program Family Medicine in the Navajo Area Indian Health Service: Crownpoint Health Care Facility (Covering Northwestern New Mexico) 505-786-6354 Gallup Indian Medical Center, Gallup, New Mexico (Covering Northwestern New Mexico) 505-727-8834 Northern Navajo Medical Center (Covering Ship Rock - Four Corners) 971-570-0704 Listed within these resources are HRSA federally funded health centers which offer medical services to individuals even if they don't have insurance. Services are provided on fees based upon an ability to pay. It is important for those who have Lynch syndrome to realize there are resources for cancer screening, once diagnosed. The HRSA facilities are family health centers and are often operated by general practitioners and women's medical health professionals. It is important to use these facilities in a manner of first consulting the GP and providing him with the family history for assessment. The GP will then order specific testing and make referrals as needed, to other facilities which offer services which are provided on fees based upon an ability to pay. As well, resources include the CDC and other states' Colonoscopy programs, which are also provided with fees which are based upon an ability to pay. Family Voices Family Health Advocacy Organization Federally Funded Medical Centers offering low cost/no cost health care: lst Choice - Los Lunas, 1259 Highway 314 NW, Los Luncas, NM 87031 505-865-4618 Alameda Center, 7704 2nd St NW, Albuquerque, NM 87107 505-890-1458 www.fcch.com Alamosa Community Center 6900 Gonzales Rod, SW, Albuquerque, NM 87121 505-831-2534 Belen Center, 120 S. 9th St., Belen, NM 87002 505-861-1013 Ben Archer Health Centers Locations: Radium Springs 575-526-6200 Columbus 575-531-2165 Deming 575-546-4800 Los Cruces 575-382-9292 Truth or Consequences 575-894-7662 Hatch 575-267-3280 Alamogordo 575-443-8133 Casa Los Arboles, 502 Los Arboles Avenue NW Albuquerque, NM 505-344-6738 Chama Clinic, 211 N. Pine Street, Chama, NM 87420 505-756-2143 Coyote Clinic, State Road 96, 3396, Coyote NM 87012 505-638-5487 La Casa Family Health Center, 1515 W. Fir Street, Portales, NM 88130 505-356-6695 DeBaca Family Practice Clinic, fort Sumner, NM 575-355-2414 Edgewood Center 8 Medical Center Road, Edgewood, NM 87015 505-821-3406 El Pueblo Health Services, Bernalillo, New Mexico 505-267-2324 Embudo Valley Clinic, Embudo, New Mexico 505-579-4255 Espanola Clinic Coronado Avenue, 505-753-7395 Bond Street 505-753-9503 First Choice Community Health Care, Albuquerque NM 87105 505-873-7400 First Nations Community HealthSource, Albuquerque, NM 505-262-2481 Hidalgo Medical Service Cooper Medical, Silver City NM Hidalgo Medical Services, Lordsburg, NM 505-534-9910 HMS Cobre Health Center Bayard, NM HMS Animas Valley Clinic Animas, NM 505-548-2742 HMS Med Center Bayard, NM 505-537-5068 HMS Med Center Cliff, NM 505-535-4384 La Casa de Buena Salud, 103 Don Pablo Lane, Hondo, NM 88336 505-653-4830 La Casa de Buena Salud, Clovis 575-769-0888 La Casa Family Health Center, Roswell, New Mexico 575-623-3225 La Clinica de Familia East Mesa, Las Cruces, NM 575-373-9202 521-7181 La Clinica Del Pueblo de rio Arriba Amararilla, NM 505-685-4637 La Familia Southside Clinic, Santa Fe, NM 505-438-3195 La Familia Family Medical Center, Santa Fe, NM 505-982-4425 La Loma Clinic, 1058 La Loma Road, Anton Chico, NM 505-427-5036 Las Clinicas Del Norte, El Rito, NM 505-581-4728 Las Clinicas Del Norte, Abiquiu, NM 505-685-4479 Las Clinicas Del Norte, Ojo Caliente, NM 505-583-2191 Las Cruces Womens Clinic, Las Cruces, NM 575-532-2044 Las Vegas Medical Clinic, Las Vegas, NM 505-425-6788 LCDF - Anthony Clinic, Anthony, NM 575-882-5706 LCDF Chapparal, Chapparal, NM 575-824-0820 LCDF, San Miguel, NM 575-233-3830 LFMC Healthcare for the Homeless, Santa Fe, NM 505-988-1742 X 107 Nimbres Valley Health Center, Nimbres, NM 575-536-3991 Mora Valley Community Health Service, Moral, NM 505-387-2201 North Valley Health Center, Albuquerque, NM 505-345-3224 Pecos Valley Medical Center, Pecos, NM 505-757-6482 PMS Artesia Health Resources, Artesia, NM 575-746-8890 Carlsbad, NM 505-887-2455 Reserve, NM 575-533-6456 Chapparal, NM 575-648-2627 Cuba, NM 575-289-3291 Counselor, NM 575-568-4328 Deming, NM 505-546-4663 Estancia, NM 505-384-2777 Farmington, NM 505-327-4796 Hobbs, NM 505-391-0270 Pueblo, NM 575-834-0802 Loving, NM 505-745-3573 Magdalena, NM 575-854-3161 Mountainair, NM 505-847-2271 Ojo Encino, NM 575-731-2268 Tucumcari, NM 505-461-2200 Quemado, NM 575-773-4610 Questa, NM 505-586-0322 Rio Rancho, NM 505-896-0928 Farmington, NM 505-327-1271 Cloudcroft, NM 505-682-2542 Torreon, NM 575-731-2284 Tularosa, NM 505-585-1250 Thoreau, NM 505-862-7417 Gallup, NM 505-863-3828 863-3120 Grants, NM 505-287-2958 Socorro, NM 575-835-4444 Roy Clinic, 555 Wagon Mount Hwy, Roy NM 505-485-2583 San Miguel Clinic, Ribera, NM 505-421-1113 School Based Clinic, Santa Theresa, NM 575-874-9338 South Broadway Health Center, Albuquerque, NM 505-768-5450 Springer Clinic, 309 Prospect Avenue, Springer, NM 505-483-0282 Truchas Clinic, Truchas, NM 505-689-2461 Wagon Mound Clinic, Wagon Mound, NM 505-666-2288 Low Cost-No Cost Cancer Screenings: New Mexico Colorectal Cancer Program 5301 Central Ave. N.E., Suite 800 Albuquerque, NM 87108 505-841-5860
Sunday, 15 July 2012 | 1313 hits
122. Arizona
ARIZONA Affordable Care Act: Insurance for Preexisting Conditions Arizona Fit at Fifty HealthCheck Program 1740 W. Adams, Suite 205 Phoenix, AZ 85007 602-542-1222 (CDC Colonoscopy Program) Health and Human Services Information for Rural Arizonans University of Arizona Cancer Center - High Risk Cancer Genetics Clinic An NCI Comprehensive Cancer Center, Tucson, Arizona 520-742-4183 Arizona Assistance In Health Care for Cancer Patients in the Phoenix Metro Area Family Medicine In the Navajo Area Indian Health Service Chinle Comp. Health Care Facility 970-882-1550 Serving Northern Arizona Fort Defiance Indian Hospital Serving Northern Arizona near the New Mexico Border 928-729-8658 Kaventa PHS Indian Health Center 928-697-4232 Serving North Central Arizona near Utah border Tuba City Regional Health Care Corporation 928-283-2501 Serving North Central Arizona Winslow Indian Health Care Center, Inc. 928-289-6124 Serving North Central Arizona Listed within these resources are HRSA federally funded health centers which offer medical services to individuals even if they don't have insurance. Services are provided on fees based upon an ability to pay. It is important for those who have Lynch syndrome to realize there are resources for cancer screening, once diagnosed. The HRSA facilities are family health centers and are often operated by general practitioners and womens medical health professionals. It is important to use these facilities in a manner of first consulting the GP and providing him with the family history for assessment. The GP will then order specific testing and make referrals as needed, to other facilities which offer services which are provided on fees based upon an ability to pay. As well, resources include the CDC and other states' Colonoscopy programs, which are also provided with fees which are based upon an ability to pay. HRSA Medical Centers: 7th Avenue Walk-In Clinic, Phoenix, AZ 602-344-6655 Adelante Healthcare Buckeye, Buckeye, AZ 623-386-4814 Mesa, Mesa, AZ 480-491-6235 Sun City West, AZ 623-544-3214 Surprise, AZ 623-546-2294 Wickenburg, AZ 928-684-9555 Altar Valley Health and Wellness Center, Sasabe, AZ 85633 Arivaca Clinic, Arivaca, AZ 520-407-5500 Avondale Family Health, Avondale, AZ 623-344-6800 Canyonlands Urgent Care, Page, AZ 928-645-1700 Chandler Family Health Center 480-344-6100 Chiulchinbeto Clinic, Marble Canyon, AZ 928-697-8154 Chiricahula Community Health Centers: Bisbee, AZ 520-432-3309 Elfrida, AZ 520-642-2222 Clifton Family Health Center 928-865-4511 Clinica Del Alma 520-616-6760 Comprehensive Healthcare Center, Phoenix, AZ 602-344-1015 Continental Family Medical Center, Green Valley, AZ 520-407-5900 Coolidge Satellite, Coolidge, AZ 520-723-9131 Cottonwood, Cottonwood, AZ 928-639-8132 Desert Senita Community Health Center, Ajo, AZ 520-387-4500 Duncan Health Clinic, Duncan, AZ 928-359-1380 El Mirage Family health Center, El Mirage, AZ 623-344-6500 El Pueblo Health Center, Tucson, AZ 520-670-3707 Elroy Satellite, Elroy, AZ 520-466-7883 Family Health Center, Patagonia, AZ 520-281-1550 Flowing Wells Family Practice 520-887-0800 Fredonia Community Health Center, Fredonia, AZ 928-643-6215 Freedom Park health Center, Tucson, AZ 520-790-8500 Glendale Family Health Center, Glendale, AZ 623-344-6700 Guadalupe Family Health Center, Guadalupe, AZ 480-344-6000 Jennifer and Ginger and Ryan Clinic, Douglas, AZ 520-364-3285 Keeling Health Center, Tucson, AZ 520-696-6969 Kingman Clinic 1510 N. Stockton Hill Road, Kingman, AZ Lake Powell Medical Center, Marble Canyon, AZ 928-645-8123 Mammoth Clinic, Mammoth, AZ 520-487-0322 Marana Health Center: Marana, AZ 520-682-4111 Tucson, AZ 520-616-4948 Maricopa County Department of Public Health, Phoenix 602-372-2100 Maricopa Satellite, Maricopa, AZ 520-568-2245 Mariposa CHC: Rio Rico, AZ 520-281-1550 Nogales, AZ 520-281-1550 Maryvale Family Health Center, Phoenix, AZ 623-344-6900 McDowell Healthcare Center, Phoenix, AZ 602-344-6550 Mesa Family Health Center, Mesa AZ 480-344-6200 MHC Primary Care (Tucson Medical Center) 520-682-4560 Mountain Park Health Center, Tempe, AZ 480-927-1000 Phoenix, AZ 602-243-1746 Maryvale, AZ 623-247-9254 Goodyear, AZ 623-936-6795 Native Health I-17 Clinic, 2610 W. Bethany Home Rd, Phoenix, AZ Navajo Mtn Community Health Ctr, Navajo Mountain, AZ 928-672-2494 North Country Ash Fork, AZ 928-637-2305 Bullhead City, AZ 928-213-6100 Flagstaff, AZ 928-527-1899 Holbrook, AZ 928-524-2851 Lake Havasu City, AZ 928-213-6100 Springerville, AZ 928-333-0127 Show Low Clinic, Show Low, AZ 928-537-4300 St. Johns, AZ 928-327-3705 Winslow, AZ 928-289-2000 Seligman, AZ 928-422-4017 Grand Canyon, AZ 928-638-2551 Northwest AZ Regional Health Center, Littlefield, AZ 928-347-5971 Oracle Satellite, Oracle, AZ 520-896-2092 Ortiz Community Health Center, Tucson, AZ 520-682-3777 Prescott Valley 928-583-1000 Quick Care, Tucson, AZ 520-682-4560 River Cities Community Clinic, Bullhead City, AZ 928-704-9700 Safford Clinic, Safford, AZ San Manuel Satellite, San Manuel, AZ 520-385-2234 Santa Catalina Health Center 520-825-6763 Seventh Avenue Family Health Center 602-344-6600 South Central Family Health Center 602-344-6400 St. Mary's Hospital, Tucson, AZ 520-670-3707 Sun Life Family Health Center, Casa Grande, AZ 520-836-3446 Sunnyslope Family Health Center, Phoenix, AZ 602-344-6300 Sunset CHC, Inc. Wellton, AZ 928-785-3256 Yuma, AZ 928-819-8999 San Luis, AZ 928-627-3822 Sunset Community Health Center, Somerton, AZ 928-627-2051 Three Points Clinic, tucson, AZ 520-407-5700 Tucson Birth and Women's Health Center, Tucson, AZ 520-670-3707 United CH Center, Green Valley, AZ 520-407-5400 Wesley Health Center, 1300 S. 10th St., Phoenix, AZ Wilmot Community Health Center, Tucson, AZ Arizona Low Cost/No Cost Cancer Screenings Arizona Fit at Fifty HealthCheck Program 1740 W. Adams, Suite 205 Phoenix, AZ 85007 602-542-1222 REVISED 9/17/2012
Sunday, 15 July 2012 | 1813 hits
123. California
CALIFORNIA Affordable Care Act For Individuals With Preexisting Conditions California provides very poor coverage for the screenings for colorectal cancer, offering a $120 Medicare supplement for fecal occult testing for colorectal cancer or for a mammogram. California Insurance Code ßß 10194 and 10194.2 (1999)1367.665 (2000 California Patient Law California Health and Safety Code Section 1374.7 Prohibits prepaid health care plans from denying, canceling, refusing to renew or charging more for coverage, based on genetic characteristics. This is defined as a family history of genetic disorder or gene alterations causing or increasing tthe risk of disease or disorder. Insurance Codes 10140 and 10146 to 10149 Prohibits life and disability income insurance companies from discrimination based on genetic characteristics, prohibits companies from requiring genetic tests and proscribes penalties for the unauthorized release of genetic test results. In Home Support Services and Care Civil Code Section 5617 Provides broad protection against unauthorized disclosure of genetic health results by health plans. Medi-Cal Health Care Assistance Under Medi-Cal, individuals can receive surveillance testing and the health care they need to fight cancers. As well, genetic testing is provided. California Major Risk Medical Insurance Program The following offers no cost or low cost health care for surveillance testing and consists of womens cancer screenings and some colonoscopy screenings. Colonoscopy screenings for low/cost - no/cost health care can be obtained through physicians who accept Medi-cal or through the major University Health Care Hospitals. Listed within these resources are HRSA federally funded health centers which offer medical services to individuals even if they don't have insurance. Services are provided on fees based upon an ability to pay. It is important for those who have Lynch syndrome to realize there are resources for cancer screening, once diagnosed. The HRSA facilities are family health centers and are often operated by general practitioners and women's medical health professionals. It is important to use these facilities in a manner of first consulting the GP and providing him with the family history for assessment. The GP will then order specific testing and make referrals as needed, to other facilities which offer services which are provided on fees based upon an ability to pay. As well, resources include the CDC and other states' Colonoscopy programs, which are also provided with fees which are based upon an ability to pay. Health and Human Services Information for Rural Californians Complete List of Over 900 HRSA Health Centers in California which provide health care through a general practitioner or Women's Health expert SOUTHERN CALIFORNIA HEALTH CARE CLINICS - Low or No Cost Los Angeles County Health Care - Low or No Cost El Proyecto del Barrio Family Health Care Clinic, 8902 Woodman Ave., Arleta, CA 818-830-7090 X 219 Westside Neighborhood Clinic, 1436 W. 23rd Street, Long, Beach, CA 562-595-5507 South Bay Family Healthcare Center, 742 Gardena Blvd, Gardena, CA 310 802-6170 AltaMed Health Services Corp 5427 Whittier Blvd, Los Angeles, CA 323-869-1900 Arroyo Vista Family Center, 6000 N. Figuero Street, Los Angeles, CA 323-254-5291 Asian Pacific Health Care Venture, Inc. 1530 Hillhurst Avenue #200, Los Angeles, Speaks: Cambodian, Cantonese, English, Mandarin, Japanese, Tagalog, Thai, Vietnamese Clinica Msr Oscar A. Romero, 123 S. Alvarado St. Los Angeles, CA 213-989-7700 Speaks English, Spanish and Kanjobal (frm the Maya Region) Clinica para las Americas 318 S. Alvarado St., Los Angeles, CA 213-484-8434 Hollywood Sunset Free Clinic 3324 Sunset Bld, Los Angeles, CA 323-660-7959 Northeast Community Clinic, 5809 N. Figueroa St., Los Angeles 323-256-3884 Pediatric and Family Medical Center, 1530 Olive Street, Los Angeles 213-746-1037 QueensCare Family Clinic, 3242 W. 8th Street, Los Angeles 213-368-9779 South Central Family Health Center, 4524 San Pedro Place, Los Angeles 323-233-1626 Speaks English, Korean, Spanish T.H.E. Clinic, Inc. 3860 Martin Luther King Blvd, Los Angeles, CA 323-295-6571 Speaks English, French, Japanese, Tagalog, Spanish, Thai, Vietnamese Los Angeles Free Clinic 8405 Beverly Blvd, Los Angeles 323-653-1990 Speaks English, Russian, Spanish Watts Health Foundation, Inc. 10300S. Compton Avenue, Los Angeles, CA 323-564-4331 Mission City Community Nework, Inc. 15206 Parthenia St. North Hills, CA 818-895-3100 Valley Community Clinic, 6801 Coldwater Canyon Avenue, North Hollywood, CA 818-763-8836 Westside Family Health Care - Santa Monica Westside Women's Health Center 1711 Ocean Park Blvd, Santa Monica, CA 310-450-4773 Women's Clinic - Los Angeles Women's Clinic and Family Center - Los Angeles Free Or Low-Cost Health Clinics - Los Angeles County Harbor Free Clinic, 599 W. 9th Street San Pedro California 310-547-0176 UMMA Community Clinic 711 W. Florence Ave, Los Angeles (SouthCentral) 323-789-5610 Tarzana Treatment Center, Inc. 18646 Oxnard St., Tarzana 818-996-7019 Speaks Armenian, English, Russian and Spanish Conejo Free Clinic - Thousand Oaks Veterans Hospital - Loma Linda South Bay Family Health Clinic - Torrance, California Samuel Dixon Family Health Center, 31257 San Martinez Road, Val Verde, CA 805-257-4008 Venice Family Clinic, 604 Rose Avenue, Venice, California 310-392-8630 Speaks Russian on Monday and Thursday City of Calexico Health Care Saban Clinics, No Cost, Low Cost Cancer Screening Locations: West LA 323-653-1990 Altamed Health Service, Low Cost, No Cost Cancer Screening LA Whittier and Surrounding Area Community Health Center - Chinatown 767 N. Hill St., Suite 200, Los Angeles, CA 213-808-1700 Chinatown Service Center Community Health Center - San Gabriel Valley, 320 S. Garfield Ave #118, Alhambra, CA. 91801 213-808-1700 Orange County Health Care - Low or No Cost Share Ourselves Free Clinic, 1550 Superior Avenue, Costa Mesa 949-650-0640 Costa Mesa Medical Clinic, 745 W. 19th Street Suite F, Costa Mesa, CA 949-574-0210 St. Jude Medical Center Mobile Health Clinic 101 E. Valencia Mesa Drive, Fullerton, CA 714-446-7084 Sierra Health Center, 1815 West Avenue Suites E-G, Fullerton, California 714-870-0717 Nhan Hoa Comprehensive Health Care Clinic, 14221 Euclid St. Ste H, Garden Grove, CA 714-539-9999 Speaks English and Vietnamese Huntington Beach Community Clinic, 8401 Newman Ave, Huntington Beach, CA 714-847-4222 OC Quality Health Care, 6552 Bolsa Avenue, #D Huntington Beach, CA 714-907-0775 Laguna Beach Community Clinic 362 3rd AVenue, Laguna Beach, CA 949-494-0761 X 10 Gary Center, 341 Hillcrest St., La Habra, CA 562-691-3263 El Toro Medical Clinic 23823 El Toro Road, Lake Forest, CA 949-380-1227 Lestonnac Free Clinic, 1215 E. Chapman Avenue, Orange, CA 714-633-4600 Living Well Medical Clinic, 1234 W. Chapman Avenue #203, Orange, CA 714-633-4673 La Amistad Clinic, 353 S. Main Street, Orange CA 714-771-8252 Orange County Public Health Clinics - Orange County Free Clinics Community Care Health Centers - Huntington Beach, Santa Ana, Orange County Student Health Center, Irvine, California University of Irvine Family Health Center, 300 W. Carl Karcher Way, Anaheim, CA 714-456-5100 (Speaks English, Spanish, Vietnamese) Moorpark Family Care Center, 35 W. Los angeles, Avenue, Moorpark, CA 805-529-4624 Mission Hospital's Camino Health Center, 30300 Camino Capistrano, San Juan Capistrano, CA Free Health Plan 1515 S. Broadway #D, Santa Ana, CA 714-285-9883 Free Health Plan, 2209 S. Main Street, Santa Ana, CA 714-668-1750 Ruiz Patel Medical Clinic, 1430 W. First St., Santa Ana, CA 714-544-3430 UCI Family Health Center, 800 N. Main Street, Santa Ana, CA 714-456-7002 Vietnamese Comm. of Orange County, Asian Health Center, 5015 W. Edinger Avenue Suites K-L, Santa, Ana, CA 714-418-2040 Speaks English and Vietnamese San Diego County _Low or No Cost San Diego, California No Cost or Low-Cost Clinics Ventura County Magnolia Family Health Center and Womens Clinic 120 W. Magnolia, Oxnard, CA 805-981-5151 Las Flores Women's Center, 2500 S. C Street, #D Oxnard, CA Santa Paula Family Health Care Clinic 1334 E. Main Street, Santa Paula, California 805-933-8445 Sierra Vista Family Care, 4531 Alamo St., Simi Valley, CA 805-584-4885 Simi Valley Public Health, 660 E. Los Angeles Avenue, Simi Valley, CA 93065 805-578-3675 Riverside County Health Care - Low or No Cost Ruiz Patel Medical Clinic, 401 S. Lincoln Avenue, Corona, CA 951-372-0010 Northern California Health Care Low or No Cost Feminist Women's Health - Chico, Redding, Sacramento Stanford University - Palo Alto, California Stanford Hospital, Palo Alto, California Women's Community Clinic - San Francisco Lyon Martin Health Services - San Francisco List of Health Clinics - Berkeley and Oakland University of California-San Francisco Women's Health - San Francisco, CA San Francisco No Cost and Low Cost Health Care Healthy San Francisco - San Francisco, CA Shalom Free Clinic - Chico San Jose Free Clinics - San Jose, California Davis Community Clinic - Davis, California Gardner Health Center, San Jose, California (Los Cost, No Cost Cancer Care) Alviso Health Center, Alviso, California 408-935-3900 Comprecare Health Center, San Jose, California 408-272-6300 Gardner Health Center, South County, Gilroy, California 408-848-9400 St. James Health Center, San Jose, California 408-918-2600 California State Subsidy Health Care Programs - Santa Cruz Health Care MAJOR CANCER CENTERS VA (Veterans) McClellan (Sacramento) Outpatient Care Cedar Sinai Comprehensive Cancer Center, Los Angeles, California Burnham Institute, La Jolla, California Jonsson Comprehensive Cancer Center, Los Angeles Stanford Medical Center, Palo Alto, California (An NCI Institution) UCLA Medical Center, Los Angeles, California (An NCI Institution) University of California - Davis Medical Center, Sacramento, California (An NCI Institution) University of California, Helen Diller Cancer Center, San Francisco (An NCI Institution) Genetic Testing Information on Lynch Syndrome USC - Norris Comprehensive Cancer Center, Los Angeles, CA (an NCI Institution) Chao Family Comprehensive Cancer Center, Irvine, California (an NCI Institution) City of Hope Comprehensive Cancer Center, Duarte, California (An NCI Institution) Robert and Beverly Lewis Family Cancer Care Center, Pomona, Califonria Veterans Affairs Medical Centers: Fresno Livermore Palo Alto Loma Linda Long Beach Los Angeles Mather, Menlo Park San Diego San Francisco Veterans Affairs Outpatient Facilities California Colon Cancer Control Program (CCCCP) 1616 Capitol Avenue, Suite 74.421 Sacramento, CA 95814-5052 916-449-5300 California State Low Cost Health Care Programs California possesses ovarian cancer legislation. State legislation on ovarian cancer: Requires the Department of Health to provide awareness and screening information to consumers, patients, and health care providers (not fully funded)Requires insurance companies to reimburse patients for medically accepted cancer screening tests (CA-125, etc.) Requires physicians and surgeons who are primarily responsible for conducting annual gynecological examinations to provide patients with a standardized summary in language understood by the patient, describing symptoms and methods of diagnosis for gynecologic cancers. California Genetic Discrimination Law - Insurance Code 742.405. (a) No multiple employer welfare arrangement shall refuse to enroll any person or accept any person as a subscriber or renew any person as a subscriber after appropriate application on the basis of a person's genetic characteristics that may, under some circumstances, be associated with disability in that person or that person's offspring. No multiple employer welfare arrangement shall require a higher rate or charge, or offer or provide different terms, conditions, or benefits, on the basis of a person's genetic characteristics that may, under some circumstances, be associated with disability in that person or that person's offspring than is at that time required of any other individual in an otherwise identical classification, nor shall any multiple employer welfare arrangement make or require any rebate, discrimination, or discount upon the amount to be paid or the service to be rendered under the arrangement because the person carries those traits. (b) No multiple employer welfare arrangement shall seek information about a person's genetic characteristics for any nontherapeutic purpose. (c) No discrimination shall be made in the fees or commissions of a solicitor or solicitor firm for an enrollment or a subscription or the renewal of an enrollment or subscription of any person on the basis of a person's genetic characteristics that may, under some circumstances, be associated with disability in that person or that person's offspring. (d) "Genetic characteristics" as used in this section shall have the same meaning as defined in Section 10123.3. 742.407. (a) This section shall apply to the disclosure of genetic test results contained in an applicant or enrollee's medical records by a multiple employer welfare arrangement. (b) Any person who negligently discloses results of a test for a genetic characteristic to any third party in a manner that identifies or provides identifying characteristics of the person to whom the test results apply, except pursuant to a written authorization as described in subdivision (g), shall be assessed a civil penalty in an amount not to exceed one thousand dollars ($1,000) plus court costs, as determined by the court, which penalty and costs shall be paid to the subject of the test. (c) Any person who willfully discloses the results of a test for a genetic characteristic to any third party in a manner that identifies or provides identifying characteristics of the person to whom the test results apply, except pursuant to a written authorization as described in subdivision (g), shall be assessed a civil penalty in an amount not less than one thousand dollars ($1,000) and no more than five thousand dollars ($5,000) plus court costs, as determined by the court, which penalty and costs shall be paid to the subject of the test. (d) Any person who willfully or negligently discloses the results of a test for a genetic characteristic to a third party in a manner that identifies or provides identifying characteristics of the person to whom the test results apply, except pursuant to a written authorization as described in subdivision (g), that results in economic, bodily, or emotional harm to the subject of the test, is guilty of a misdemeanor punishable by a fine not to exceed ten thousand dollars ($10,000). (e) In addition to the penalties listed in subdivisions (b) and (c), any person who commits any act described in subdivision (b) or (c) shall be liable to the subject for all actual damages, including damages for economic, bodily, or emotional harm which is proximately caused by the act. (f) Each disclosure made in violation of this section is a separate and actionable offense. (g) The applicant's "written authorization," as used in this section, shall satisfy the following requirements: (1) Is written in plain language. (2) Is dated and signed by the individual or a person authorized to act on behalf of the individual. (3) Specifies the types of persons authorized to disclose information about the individual. (4) Specifies the nature of the information authorized to be disclosed. (5) States the name or functions of the persons or entities authorized to receive the information. (6) Specifies the purposes for which the information is collected. (7) Specifies the length of time the authorization shall remain valid. (8) Advises the person signing the authorization of the right to receive a copy of the authorization. Written authorization is required for each separate disclosure of the test results, and the authorization shall set forth the person or entity to whom the disclosure would be made. (h) This section shall not apply to disclosures required by the Department of Health Services necessary to monitor compliance with Chapter 1 (commencing with Section 124975) of Part 5 of Division 106 of the Health and Safety Code, nor to disclosures required by the Department of Managed Health Care necessary to administer and enforce compliance with Section 1374.7 of the Health and Safety Code. 10140. (a) No admitted insurer, licensed to issue life or disability insurance, shall fail or refuse to accept an application for that insurance, to issue that insurance to an applicant therefor, or issue or cancel that insurance, under conditions less favorable to the insured than in other comparable cases, except for reasons applicable alike to persons of every race, color, religion, sex, national origin, ancestry, or sexual orientation. Race, color, religion, national origin, ancestry, or sexual orientation shall not, of itself, constitute a condition or risk for which a higher rate, premium, or charge may be required of the insured for that insurance. Unless otherwise prohibited by law, premium, price, or charge differentials because of the sex of any individual when based on objective, valid, and up-to-date statistical and actuarial data or sound underwriting practices are not prohibited. (b) Except as otherwise permitted by law, no admitted insurer, licensed to issue disability insurance policies for hospital, medical, and surgical expenses, shall fail or refuse to accept an application for that insurance, fail or refuse to issue that insurance to an applicant therefor, cancel that insurance, refuse to renew that insurance, charge a higher rate or premium for that insurance, or offer or provide different terms, conditions, or benefits, or place a limitation on coverage under that insurance, on the basis of a person's genetic characteristics that may, under some circumstances, be associated with disability in that person or that person's offspring. (c) No admitted insurer, licensed to issue disability insurance for hospital, medical, and surgical expenses, shall seek information about a person's genetic characteristics for any nontherapeutic purpose. (d) No discrimination shall be made in the fees or commissions of agents or brokers for writing or renewing a policy of disability insurance, other than disability income, on the basis of a person's genetic characteristics that may, under some circumstances, be associated with disability in that person or that person's offspring. Revised 1/19/2013
Monday, 09 July 2012 | 2906 hits
124. Events
PETITION THE WHITE HOUSE TO PROCLAIM MARCH 22ND NATIONAL LYNCH SYNDROME HEREDITARY CANCER PUBLIC AWARENESS DAY! The White House has invited the public to petition them with issues the people feel important. We need 100,000 signatures affixed upon this petition encouraging the President and the White House to sign a proclamation declaring March 22, 2013 Lynch Syndrome Public Awareness Day in the United States. We have 25 days to get it done. Each of us needs to get 50 persons to sign the attach petition. We believe it will help get research for a gene therapy...and funding for care...put on FACEBOOK sites, blogs, everywhere! This is an opportunity we can't afford to miss. Click here to sign! LSI ASSISTS WITH CLINICAL STUDY Lynch Syndrome International is assisting Kristen Dilzell of the Stanford University's Genetics Program. Information regarding the study and links to participate are below. We strongly encourage everyone to participate. Dear Lynch Syndrome International Member and Relatives, You are being invited to participate in a study that is investigating how family members use educational materials to communicate about Lynch syndrome/ hereditary non-polyposis colon cancer (HNPCC). Participants in this study will complete an online survey that will ask a series of questions regarding what materials people gave to their relatives to help explain the diagnosis of Lynch syndrome. We hope that this survey will help educators and health professionals create and distribute the most useful materials for families with Lynch syndrome in the future. This study will be surveying both individuals who were the first in their family to be diagnosed with a Lynch syndrome mutation and their blood relatives. Your participation in this study is completely voluntary and anonymous, and you may stop at any time. Participants must opt-in to the study. Should you choose to participate, you will take an online survey that will take approximately 20 minutes to complete. No identifying information will be collected in this survey. If you are interested in completing our survey and you were the first individual in your family diagnosed with a Lynch syndrome mutation, please go to the following site: https://stanforduniversity.qualtrics.com/SE/?SID=SV_eyuhejpBGFCZjGR If you are interested in completing our survey and one of your blood relatives was the first person in your family diagnosed with a Lynch syndrome mutation, please go to the following site: https://stanforduniversity.qualtrics.com/SE/?SID=SV_5j6IvU3XELxF6Dj People who have chosen to pursue further evaluation for Lynch syndrome and people who have not had further evaluation are all eligible to participate. We also encourage you to tell your family members who are/were at risk of carrying a Lynch syndrome mutation about our study and to complete our survey. Recruiting your relatives is not a requirement for this study. However, we are looking to survey as many family members as possible, both those who have chosen to pursue further evaluation for Lynch syndrome and those who have not. If interested, kindly pass along this information to your relatives who are/were at risk of carrying a Lynch syndrome mutation. All participants are eligible to be entered into a prize drawing for one prize of a $50 Amazon gift card. The prize drawing will take place on March 1, 2013 and will be conducted by Kristen Dilzell. No participation is necessary to enter or win a prize and participation does not increase your chances of winning. The winners of this prize drawing will be informed via the email address (or, alternatively, phone number) in contact information provided. To enter the prize drawing, please visit the following site to enter your contact information: https://stanforduniversity.qualtrics.com/SE/?SID=SV_bJZwe0mi0k6UWsR Your contact information will be in no way linked to your survey response. If you have any questions or comments about this study, please contact Kristen Dilzell at kdilzell@stanford.edu . Thank you for your consideration. Best, Kristen Dilzell, BS Stanford University, Department of Human Genetics and Genetic Counseling ~LSI ATTENDS OMED 2012~ With much gratitude to the Doctors of Osteopathic Medicine, their national organization, AOA and Ann Fassano of Ann Fassano, Inc., for granting Lynch Syndrome International the opportunity to share information about Lynch syndrome with over 5,000 of their physicians. For advocacy organizations, exhibiting is almost dreaded and is extremely difficult. There is nothing more painful for us, than when those who are entrusted with the responsibility of care for us and in whom we place not only our lives, but the lives of those who we love, don't even bother to look at us as they pass us in the aisles of medical conferences or when asked if we can speak with them, to wave us away from them. It is heartbreaking and devastating as many of us continue to finance LSI and bring about public awareness to protect families and save lives... The Doctors of Osteopathic Medicine restored our faith in medical providers last week and the response was absolutely, wonderfully incredible... Two years ago, we attended their annual conference and personally spoke with over two thousand dollars. At that time, approximately half ignored us and we actively solicited most of the other half. None had ever had a patient with Lynch syndrome, very few had heard of Lynch syndrome and about half a dozen of those with whom we had spoken, knew how to diagnose and manage it. This year, we spoke with over 1300 physicians and medical students, most of whom approached us...the physicians telling us of their recent diagnoses of patients with Lynch syndrome or asking about it--and the medical students advising how they had learned about it in medical school the past year or two and were anxious to begin diagnosing it. The students are energized! One in every five medical students in the United States are attending Osteopathic Medical Schools. It was suggested we work with their association in concert of acheiving public awareness together...and we are exploring a way this can be facilitated. One hospital invited our experts to go on "Grand Rounds" and teach all their physicians about Lynch syndrome and a medical school approached us and advised they would like to be involved in projects involving Lynch syndrome. A trade journal is considering writing an article on the cost saving effects of genetic testing and universal testing of tumors. All were engaged and excited about the possiblities of very long term relationships with patients. All were concerned. Perhaps working with and engaging the DO's is the secret to breaking the barriers of diagnosis of Lynch syndrome. It certainly reinforced that our efforts of public awareness are making a huge difference...and they are welcomed by the gatekeepers who are responsible for diagnosing us and making referrals to specialists for annual cancer screenings. For these three days we are so very grateful...1300 more physicians now know about Lynch syndrome and are equipped to help protect families and save lives. Many have reinforced that they are identifying patients through genetic testing and managing them. We found hope in San Diego, at that conference... Warmth, compassion and true concern was what we desperately needed to see and experience from those in a position of trust...the D.O.s did not let us down! Celebrate National Previvors Day on September 26, 2012! Have a party! Invite everyone. Embrace life! Take your doctors brownies, bake a cake, distribute brochures about LS! Host a fundraising event for LSI! Tell your story to newspapers, magazines, radio talk show hosts! Celebrate! Pay It Forward...help others protect themselves their families and save lives! Write to us at info@lynchcancers.com and we will send you a free package of informational brochures to distribute to medical professionals in your local area, to friends and others and some other "goodies," to celebrate this day! A great way to celebrate is to contact Kasey's Creations of Mexia, Texas and order our LSI t-shirts for yourselves and your family or sell them to raise money for LSI! Every t-shirt order provides LSI with the funding for approximately 20 brochures, 6 wristlets, 40 tattoos. Five (5) t-shirts provides LSI with the funding for 200 brochures, 30 wristlets, over a hundred LSI tattoos! Kasey's Creations of Mexia, Texas is now marketing Lynch Syndrome International gear at reasonable prices! Order your t-shirts, hats and banners now and a portion of the proceeds will be donated to LSI. If there is something special you desire, like a hoodie or a polo, or a shirt of a specific color, be sure and ask...Kasey loves doing speciality items! Want the logo all the way across the front, just ask! Get your orders in now for Lynch Syndrome Hereditary Cancers Public Awareness Day and Relay for Life! NEWSFLASH!!! Thirty five (35) of the forty six (46) or 71% of the United States Governors requested to sign proclamations to declare Lynch Syndrome Hereditary Cancer Public Awareness Day have done so to create public awareness in their state! These states include: Washington Oregon Nevada Arizona New Mexico Oklahoma Arkansas Louisiana Alabama Ohio Maine New Hampshire Vermont Rhode Island New Jersey South Dakota Iowa Michigan Illinois Wisconsin Minnesota Pennsylvania Georgia Massachusetts Virginia West Virginia Nebraska Hawaii Missouri Indiana Colorado Wyoming Montana Connecticut The State of Montana, which does not issue proclamations, sent a letter of commendation, acknowledging the day and Lynch syndrome. LAST YEAR'S LYNCH SYNDROME HEREDITARY CANCER PUBLIC AWARENESS DAY! NEXT YEAR, IT IS ON FRIDAY, MARCH 22, 2013-----MARK THE DATE-----LETS MAKE IT THE BIGGEST EVER! A BIG SUCCESS! LYNCH SYNDROME PUBLIC AWARENESS DAY ON MARCH 22, 2012 -- NEXT YEAR? GET YOUR PLANS READY!!! FRIDAY, MARCH 22, 2013 This last year, many involved with Lynch syndrome from survivors to previvors, to caretakers, to medical professionals, to researchers, institutions, elected leaders and community cancer advocates and organizations stood together to make this the biggest day ever! Thirty-five governors of the United States recognized or proclaimed Lynch Syndrome Public Awareness Day. This was so very important as no other cancer condition is so very treatable as most the cancers of Lynch syndrome and in doing so, we believe these actions of public awareness will not only assist in decreasing the incidents of cancers in those with Lynch syndrome, but will protect families and will save lives. Major institutions such as Sloan Kettering and Northshore Health Systems to the smaller institutions of Sarasota Memorial Hospital, Sutter Health Systems in California and many others celebrated this day with public awareness programs. Congressional Representative Ed Towns from Pennsylvania read information about Lynch syndrome into the Congressional Record, educating our elected representatives and Congressional member John Garamendi awarded Lynch Syndrome International with an award for our efforts. Tens of thousands of brochures were distributed by volunteers working from a grass roots level, to medical providers and members of the general public. Across the nation, individuals wore blue commemorating the day as over a hundred thousand radio spots played information on Lynch syndrome and dozens of newspaper articles and internet blogs addressed Lynch syndrome. Individual medical offices displayed posters and passed out information...it was the single most biggest day in the history of Lynch syndrome! And to its sucess, we are extremely grateful to the thousands of volunteers who stood up and made this day possible! TOGETHER, WE CAN SAVE LIVES AND PROTECT FAMILIES FROM THE DEVASTATING CANCERS OF LYNCH SYNDROME. WE CAN AND WILL MAKE AN INCREDIBLE DIFFERENCE IN THE LIVES OF TENS OF THOUSANDS OF PEOPLE! CAMPAIGNS Volunteers with Lynch Syndrome International are involved in 4 campaigns per year. March - Public awareness campaign for Colon Cancer Awareness Month. During early summer, we participate in a field outreach campaign at the American Cancer Society, Relay for Life events. September - Mass media campaign for endometrial and ovarian cancers November - Family history campaign is initiated prior to Thanksgiving. IF ONE PERSON CAN MAKE A DIFFERENCE, CAN YOU IMAGINE WHAT THOUSANDS CAN DO? They can stand up and make a difference, like.... some terrific volunteers did on November 13, 2011. The Fox Chase Center Center Risk Assessment program celebrated their 20th anniversary and LSI was there. MaryEileen Griffith and Brianna Banford, Lynch Syndrome International volunteer representatives, made certain our voice was there! We are so grateful for what our previvors, survivors, caretakers and medical professionals are doing in the communities to protect families and save lives! few photos of that event! WHAT HAVE WE BEEN DOING In November, LSI hosted a webinar featuring Anya Prince of the Cancer Legal Resource Center, a project of Loyola University in Los Angeles. Anya is the resident expert genetic discrimination law. It was extremely informative and excellent information was shared. On October 22nd, we headed to San Jose and introduced ourselves to hundreds of Internists belonging to the American College of Physicians where we shared information on Lynch syndrome. Good news time! Most were quite knowledgable about it and knew the criteria for diagnostic testing Guess what? Northern California internists, including many of which were from Kaiser Permanente, are onboard with Lynch syndrome! From October 11th through October 15th, LSI we were in Montreal, Quebec, Canada for the International Human Genetics Congress where we met individuals, worldwide, who are doing incredible things so we and our families may live. It was incredible to see individuals working from early morning into the late evenings, sharing information, reviewing one another's clinical studies and collaborating with one another. We had an opportunity to see Dr. Albert de Chapelle from the James Cancer Research Center at Ohio State University, Dr. Mark Clendenning from Australia, some terrific Lynch syndrome researchers from Newfoundland, a couple great ones from the University of Utah, Salt Lake City and many, many other individuals from UCLA Med Center, Baylor University and dozens of other institutions worldwide. A big thanks to the Genetic Alliance and to the American Society of Human Genetics for their kind invitation and sponsorship to this incredible event! October 15th proved to be an exciting evening with the American Cancer Society at their Annual gala, at the community of the LSI headquarters and raising money for support and assistance to those who are fighting cancers. On September 20th, Lynch Syndrome International held its first inaugural webcom featuring Dr. Uri Ladabaum, of Stanford University Medical School. Discussion included pathological tumor testing of Lynch syndrome tumors as a cost effective way to also diagnose individuals who were not previously diagnosed, in an attempt to detect those who either did not know their family history, had no knowledge of hereditary cancers and who may not have met the Amsterdam criteria. Discussed was the cost effective feature of diagnosing indivduals with the Lynch syndrome mutated genes and getting early and preventative treatment to deter cancer development. Research and practices of Dr. Ladabaum and others will enhance the quality of life for many and will protect families and save lives! In September and October, LSI was in Southern California, in the Los Angeles area, spreading information on Lynch syndrome to primary care physicians and public health clinics. We had a chance to drop by and express gratitude to genetic counselors at the City Of Hope and Cedar Sinai. They're doing some great things. We traveled to Sonoma, California to meet health care professionals and share information on Lynch syndrome at the University of California - Davis Healthcare Systems Gastroenterology and Hepatology Conference at "The Lodge" on August 21st and 22nd. Much gratitude to UC Davis -California for providing us this very important opportunity and donating exhibit space. On August 25th, we headed back home to Vacaville and a Lynch Syndrome Awareness Night sponsored by North Bay Health Systems and Myriad Genetics. It was educationally packed evening for professionals and the public, we are thrilled they are actively pursuing public awareness. Vacaville hearts are a major reason why we are headquartered in this great town! September 8th through 10th, we were with the terrific nurse navigators who make life so much easier for those of us experiencing cancer! Yep, we exhibited at their annual conference and rubbed shoulders with Matthew Zachary of Stupid Cancer! and Jonny Imerson of Imerson's Angels, as well as with many other passionate concered persons! When you need help, there is nothing like having a nurse navigator beside you. Visit their website and learn more about these wonderful people! In August, LSI was in Seattle, Washington, meeting with individuals from the Genetic Alliance and contributing input as to the future of personalized medicine upon survivors and previvors as well as how it affected Lynch syndrome. We participated in a day long class that provided essential information on how to develop our own cancer registry and biobank for Lynch syndrome, in order to assist researchers and institutions in obtaining immediate subjects for clinical trials. CALL TO MEETING The annual meeting of Lynch Syndrome International was held on June 24, 2011, at the Marriott Courtyard, 2101 River Plaza Drive, Sacramento, California, from 8:30 a.m. to 4:30 p.m. The morning session involved a meeting of the Board of Directors and installation of some terrific new Directors, including survivors, caretakers and medical professionals. Following a hosted lunch, a general meeting of stakeholders, survivors and previvors took place, to actively plan and organize goals for 2012 public awareness campaigns, support for survivors and previvors and fundraising efforts. 2011-2012 is going to be a great year for LSI, with lots of new events planned! Stay tuned! ITS THAT TIME OF YEAR AGAIN --- GET YOUR TEAMS READY AND REV YOUR ENGINES!!!! PUT OUT THE WORD ABOUT LYNCH SYNDROME AT RELAY FOR LIFE EVENTS WITH YOUR OWN TEAM LSI !!! For those of you who are participating in the Relay for Life events at your local American Cancer Society, they are advising not to distribute brochures. We highly support the American Cancer Society and their outstanding efforts and are proud to be listed within their national directory! So, get out to those Relay for Life events and put out the word about Lynch syndrome! It is there that the best field outreach to cancer survivors will occur and families at risk for Lynch syndrome will be discovered. Just think of all the families that will be protected and the lives saved! Just give us a call or email us and we will send you bracelets for your team and others you find at high risk! TO LEARN MORE: Contact us at: 707-689-5089 info@lynchcancers.com Much gratitude to NCCN (National Comprehensive Cancer Network) for sponsoring our exhibit at their Annual Guidelines meeting in Hollywood, Florida. It gave us a wonderful opportunity to meet dedicated physicians, nurses, nurse navigators, physicians assistants and others who are working hard to protect families and save lives and introduce them into our world of inherited cancers. The experiences there were invaluable...and will make a difference in the quality of lives for many! MARCH 30, 2011 IS LYNCH SYNDROME HEREDITARY CANCERS PUBLIC AWARENESS DAY! Some of the nation's finest leaders, including Governor Brewer of Arizona, Governor Hickenlooper of Colorado, Governor Kitzhaber of Oregon, Governor Sandoval of Nevada, Governor Nixon of Missouri, Governor Jindal of Louisiana and Governor Bentley of Alabama have stepped up to the plate and proclaimed Wednesday, March 30, 2011 Lynch Syndrome Hereditary Cancers Public Awareness Day in their states! We are so very grateful to them for caring for those of us at risk for Lynch syndromes and for our families and so very grateful to other leaders who we hope will join them in the days to come! Help us spread the word about Lynch syndrome and join us in our mission to protect families and save lives! Speak to your local newspapers and tell them your story - visit television and radio stations and encourage Public Service Announcements. Share information with your local church and urge your church leaders to put it within church newsletters, bulletins and announcements to the Congregations. Speak to your local organizations about Lynch syndrome and find out the policies of genetic testing within your own health care organizations. Put information out on blogs and upon the internet, write an Op-Ed piece for your newspaper or employment newsletter. Participate in Relay for Life Events and share the information with other cancer surviving families who often don't know. Even wear a T-Shirt with "Ask me about Lynch Syndrome" embossed upon the back. There is so very much we can do to protect families and save lives...all we have to do is put out the word and many, like us, can live far longer than we ever dreamed! All we have to do is put forth the effort and try! WHEN YOU'RE INVOLVED WITH LSI, EVERY WEDNESDAY IS BLUE Whoa, doggies...hold on there! Doesn't the song go, "Rainy days and Mondays always make me blue?" Nope! Not anymore! Its the empowerment of taking control over our health and our lives that is motivating us to turn our selves blue on Wednesdays--that and the realization we do have control over the improvement of longevity of life and the quality of life! So, wear blue on Wednesdays, in dedication to those who came before us and didn't have the opportunities and the blessing we have today and in gratitude to those who made it possible for us. LSI IS NOW ON THE ASSOCIATION LIST FOR THE NATIONAL INSTITUTE OF HEALTH! LSI has been designated as a referral, patient support organization by the National Institute of Health. We are very pleased they accepted our application and are now referring individuals with Lynch syndrome to us for support. LSI IS ALSO NOW A STAKEHOLDER IN THE GAPPNET PROGRAM, SPONSORED BY THE CENTER FOR DISEASE CONTROL! We are so very excited to be involved with such wonderful organizations who are working hard to make a difference in the lives of those who live with the high risk of inherited cancers. We WILL make a difference. LSI WAS ALSO REPRESENTATED AT THE COLLABORATIVE GROUP OF THE AMERICAS - INHERITED COLON CANCERS - IT MAY TAKE A WHILE TO GET THEIR MEMBERS USED TO PATIENT ADVOCATES. ALOHA - ACOG LSI was represented on a panel of experts presenting on Lynch syndrome to a Regional Conference of the American Congress of Obstetricians and Gynecologists in October 2010, in Maui, Hawaii. This past May, we participated in a presentation in front of their National Conference and they were extremely receptive to hearing the stories of the survivors and previvors and the patient point of view. Thank you Doctors, for listening and for caring...and much gratitude to Myriad Pharmaceutical for giving us this opportunity! FAITH BASED AWARENESS CAMPAIGN LSI volunteers have worked on and are currently working on our "faith based" project and asking churches worldwide to join us in our mission of protecting families and saving lives by educating their congregations about Lynch syndrome. Though we are in the early stages of this initiative, we have reached approximately 1000 churches, to date with a total population of congregants of 500,000 people. We have a long way to go. We hope to reach over 25 millon people within the next year, with this effort! It isn't easy work communicating via computer to churches throughout the world...however, we are very fortunate to have dedicated, persistent volunteers who are working hard to make certain this initiative is a success. It can be hard and tedious, but then again...the rewards of life are the goal...advocacy is far more than a quick comment or punching the keyboard to "like" a comment on FACEBOOK....its stepping outside yourself. If you wish to be involved in this campaign, please contact us at info@lynchcancers.com. Team Great Britain is rocking, as well! Though caring for her own husband, who is ill, Jennifer has been educating thousands of students! Great job...did you know that Great Britain is very involved with LSI public awareness? Linda M., your humor, your passion and your dedication makes you our hero... REVISED: November 11, 2011 UNIVERSITY OF ARIZONA CANCER CENTER Chances are everyone knows someone with cancer. When that person is someone in your family, you might have questions about risks of cancer for yourself or your children. This program brings together experts from the University of Arizona Cancer Center to cover a broad range of topics about assessing and reducing your cancer risk. In addition, a panel of health care providers and survivors will be available for question and answer sessions. BREAST, COLON and BEYOND... Answering Questions about Hereditary Cancer Saturday, November 17, 2012 The University of Arizona Cancer Center Kiewit Auditorium 1515 N. Campbell Ave. Registration and continental breakfast: 8 a.m. Program: 8:30 a.m. – 1 p.m. Free, Pre-registration required Registration and information contact: Cindy Laughren at 626-0950 or www.azcc.arizona.edu/high-risk-program
Monday, 15 February 2010 | 16165 hits
Friday, 15 February 2013 | 10217 hits
126. Spain
SPAIN ¬† ¬† Lynch Syndrome Support ¬† Afal-Lynch¬† www.afalynch.com¬†¬† An organization of families and those who care for them, including researchers and medical professionals dedicated toward providing support for those with Lynch syndrome, creating public awareness and promoting research endeavors. ¬† Ministry of Health and Consumption, Spain Hospital Virgen del Camino, Spain Hospital Vall d'Hebron, Spain Hospital Duran i Reynals, Spain Hospital Clinico San Carlos, Spain Institute Catala D'Oncologia, Spain Hospital Universitario Virgen de la Arrixaca, Spain Catalan Institute of Oncology, Spain Hospital General Universitario Elche Spain University of Deusto, University of the Basque Country, Universidad de Deusto, Avenida de las Universidades, Bilbao, Spain ¬† Professional Associations Spanish Association of Human Genetics (La Asociaci√≥n Espa√Īola de Gen√©tica Humana) ¬† ¬† ¬† ¬†
Thursday, 02 August 2012 | 1528 hits
  Photo Courtesy of Bilal Kamoon Lynch syndrome, also known as hereditary nonpolyposis colorectal cancer (HNPCC) predisposes individuals to an approximate 80% chance of contracting colorectal cancer during one's lifetime as well as an up to 60% chance of contracting endometrial cancer.  Diagnosed individuals possess a higher than average risk of contracting various cancers of the gastrointestinal organs, cancers of the abdominal area, the ovaries, the esophaegus, the bladder, the ureter, the kidneys, the liver, the gallbladder duct, the pancreas, the prostate, the skin and the brain. Because Lynch syndrome is hereditary, a 50% chance exists that a person will pass it down to one's children.  Lynch syndrome does not skip generations. Lynch syndrome is the result of an inherited genetic defect mostly involving the MLH1, MSH2, MSH6 and PMS2 genes. Other less common mutated genes involved with Lynch syndrome exist, including the newly discovered MYH gene, associated with Muir Torre and sebaceous lesions. However the most common are the MLH1 and the MSH2.   Gene mutations are basically a permanent change in the DNA.  DNA is active and always replicating itself.  If it makes a mistake, then a mutation occurs. Gene mutations can be inherited or can develop in the sperm or in the egg (called de novo.)  These mutated genes can pass down through the generations. The particular genes of Lynch syndrome are called "mismatch repair genes."  They repair problems (mismatches) that occur during duplication of the genetic code when other genes are made.  If there is a defect in these genes, mismatches won't be repaired properly and cancer cells may develop. Some gene mutations are a result of environmental factors (such as sun radiation, poor water, ingested foods with DNA altering qualities) and acquired during one's lifetime.  These mutations are not hereditary, however the interplay between the environment and the predisposition to cancers can exacerbate the development of Lynch cancers.   In the general population, the prevalence of Lynch syndrome is predicted between 1-in-500 and 1-in-1,000.  To put this into perspective, It is projected there are approximately 600,000 mutation carriers within the U.S., however it is also projected only 5% of those individuals have been diagnosed, to date. What we do know is for each individual diagnosed, there are between twenty and over one hundred other related persons who may also be affected and who benefits from that one diagnosis.  A failure to diagnose Lynch syndrome is a failure to diagnose an entire family.   Lynch syndrome can only be accurately diagnosed through genetic testing.  There are many steps which lead up to this process including the documentation of a family history, shared with your medical provider and/or genetics counselor who will determine whether or not it appears you may be at high risk for Lynch syndrome. Lynch I solely refers to families in which colon cancer is the sole contracted cancer.  Lynch II families sustain a variety of cancers, such as endometrial, pelvic-renal, ovarian, etc., in addition to colon cancer. Not all persons diagnosed with Lynch syndrome get cancer.   As well, many others develop polyps which are removed by colonoscopy or other intervention before they become cancerous. Besides protecting our children and generations to come, the benefit of diagnosis is the ability to obtain annual testing for cancer, called surveillance testing, which may be lifesaving. So, to answer the question, there is not only treatment through resection (removal of cancers and affected organs) chemotherapy and radiation, but there is also a system of annual testing, which if utilized correctly, growths are removed prior to becoming cancerous! Most cancers take years for the tumors to grow. Lynch syndrome cancers are far more aggressive than other cancers and grow and metastasize very rapidly, often becoming cancerous and dangerous in as little as two years.  Early detection is essential for survival. No.  Researchers have been working very hard to find one.  At Case Western University, Dr. Sanford Markowitz has a vision of finding a way to put the breaks on the mutated gene to counter the mutated gene's attempts to put on the gas!  There are dedicated researchers all over the world trying to figure out what can be done to control the mutation. In the meantime, the closest thing to a cure is genetic testing to determine the existence of the mutated gene and the level of risk.  With that knowledge, implementing annual surveillance testing provides a rate of insurance for early detection of cancer, at a time when it is most treatable and before it becomes a threat to survival. .......Is there a way we can find out if she  is at  high risk for Lynch syndrome, before proceeding directly toward genetic testing? Yes. Your mother's tumor can be pathologically tested for certain qualities of Lynch syndrome.  Ask her doctor to refer it for MSI or IHC testing.  Many professional organizations and associations are calling for this testing of the tumor to become a standard of care any time colon cancer or endometrial cancer has been diagnosed.  If the family history indicates there may be a high risk of contracting cancer heritability, always ask for the tumor to be tested through MSI.  The testing is not all that expensive and it may be well worth the investment, if your family history indicates there may be a high risk for Lynch syndrome, for everyone to chip in together and pay for it if insurance doesn't cover the cost. Remember, the MSI is not a conclusive test.  It is only a presumptive test that would need to be confirmed with genetic testing but it is a good, inexpensive start.   That depends upon the specifics of your family history.  But, if you have one person in your family with early onset colorectal cancer or with endometrial cancer, it is more than enough to prompt a visit to your physician to discuss Lynch syndrome!   Endometrial cancer is the most common of women's cancers.  Annually, approximately 40,000 new cases are diagnosed and there are approximately 6,500 deaths.  Every woman has an approximate 2% risk of endometrial cancer however the woman with Lynch syndrome has an almost up to 65% risk of contracting it.  Those are pretty serious numbers. Today, we have put so much focus on "thinking pink" we have forgotten about all the other colors in the cancer rainbow--the dark blues, the teals and the peaches.  It is time to bring notice to the cancers that play dirty and "hit below the belt."   Colorectal cancer is the second largest cause of cancer deaths in the U.S. Approximately 150,000 people will be diagnosed with it during 2010 and 60,000 will die.  However the survival rate for those with colon cancer found early is more than 90%.  Individuals with Lynch syndrome have an almost 80% lifetime risk of getting colon cancer.  Therefore, that early detection is important for survival and in order to get that, it is very important to be diagnosed through genetic testing.   Muir Torre syndrome is a variant of Lynch syndrome. It is a genetic syndrome characterized by a combination of sebaceous tumors (tumors of the oil glands in the skin) and one or more internal Lynch malignancies, most often colon cancer.  In the past year, there has been a call to action that all sebaceous tumors be tested through MRI (pathology testing) for Lynch syndrome.   Known as "Turcot syndrome," "Lynch syndrome III and MMR-D syndrome, a biallelic mutation predisposes individuals to an increased risk of developing brain tumors, leukemia, lymphoma, small bowel cancer and colorectal cancer.  It is rare and fewer than seventy-five families in the United States are known to have it.  About 16% are first diagnosed with colorectal cancer and the other introductory cancers are brain cancer, leukemia or lymphoma, prior to development in the gastrointestinal tract.  Commonly recognized feature are numerous colon polyps, which often lead to a mistaken diagnosis of FAP. The average age for colorectal diagnosis is sixteen, however cancers have been diagnosed from infancy through middle adulthood.  A physical feature appearing to be common with this are dark spots on the skin called cafe au lait (CAL) spots.  It has been suggested that any child presenting with an early onset malignancy and cafe au lait spots should be tested for mismatch repair gene presentations. It is believed to occur when both parents have a mutated Lynch syndrome gene.  
Tuesday, 09 February 2010 | 35750 hits
  GENETIC TESTING The majority of cancers are "sporadic." This means they are the result of environmental exposures or possible random events within a cell. Therefore, these cancers are genetic, however they are not hereditary. Familial and hereditary cancers are thought to consist of 35% of all colorectal cancers and a significant portion of other cancers. A familial cancer is a hereditary cancer that may be due to shared environmental or lifestyle factors. Hereditary cancers, such as Lynch syndrome, result from an inherited gene mutation or variant that is present in every cell and can be passed onto the children. Lynch syndrome is the result of a mutated gene. To make sense of this, we need to think of the composition of our bodies, which are made of millions of cells. Each of these cells has 23 pairs of chromosomes and within the chromosomes are genes. These genes are lined up on the chromosomes in a very specific manner. When a gene is not normal or when some chromosomes are forgotten or duplicated, defects in the body or within its system can occur, some of which can be mild defects or some as serious as Lynch syndrome. In those of us who have Lynch syndrome, a gene stopped working that usually works to prevent colon, endometrial and other Lynch cancers. Therefore, the cancers are likely to develop...and at a younger age. There are four common basic mutations known to date, including MLH1, MSH2, MSH6 and PMS2, as well as EPCAM and a few lesser known. These genes are involved in repairing mistakes in DNA which may occur when the cell goes through the division process. Mistakes in DNA can occur due to environmental factors (i.e., exposure to chemicals, drinking impure water, etc.) however environmental mistakes do not ordinarily create inherited cancers. Epcam deletions can create Lynch syndrome. The EPCAM gene is a recently discovered contributor to Lynch syndrome, accounting for an estimated 1-3% of all detectable Lynch syndrome mutations. Studies indicate that large deletions in the end of this gene can lead to a loss of MSH2 expression and result in Lynch syndrome. With the exception of the environmental mutations and one percent of those with Lynch syndrome possessing what is known as a "de novo" mutation (meaning new and not known previously in which no known family members have/had Lynch syndrome), all other mutations are hereditary and are created by germline mutations, or rather those created during the reproduction process (in the egg or in the sperm.) Lynch syndrome cancers are extremely aggressive and don't have the extended "dwell time" (time tumors live and exist in the body until becoming cancerous) as other cancers, thus the reason it is very important to obtain regular surveillance testing. Currently, there is no gene therapy, which is commonly referred to as a "cure" for Lynch syndrome, however researchers are working feverishly in an attempt to find a way to neutralize the "rogue genes." Technology is being explored which will work sort of like an automobile gas pedal...as the gas is pressed which creates the acceleration of the cancer formation, the brake is pressed at the same time, so the vehicle will not move forward or backward. Of course, this technology, if possible, is many years away and in the absence of a cure, the closest thing to a cure is genetic testing. Genetic testing is essential toward survival. With diagnosis, individuals can obtain yearly surveillance testing during which time if pre-cancerous or cancerous polyps are discovered, they can easily be removed at an early stage-- when treatment is most effective. Without early prevention, individuals develop cancers at an aggressive rate and with metastases, survival becomes more difficult. A genetic test is ordinarily taken from a standard blood or saliva sample, which is processed within a clinical laboratory. A positive result for Lynch syndrome (HNPCC) makes one a "mutation carrier" and not only diagnoses an individual with Lynch syndrome but also serves as verification of having an increased risk for cancer. That risk is then monitored by one's health provider with surveillance measures and an annual testing regiment.     If there is a mutation which has previously been identified within the family and the test result of that specific mutation comes out negative, then it is determined one has no increased cancer risk and the individual does not have a mutated gene. Any and all cancer screening will be based upon the same screening given the general public. If a mutation has not been previously identified in the family and a comprehensive panel has not identified a mutation, then it is determined that a cancer risk is not fully defined and is unknown. As a result, based on the personal and family history of cancer, medical management for screening and surveillance will be determined. Most individuals who are diagnosed with Lynch syndrome, by genetic testing, sing praises as to the benefits. Not only are they monitored closely by medical professionals, their families also have an opportunity to be protected and to live longer lives. Psychologically and emotionally, changes occur within those who test positively. The "unknown family cancer thing" suddenly has a name and there is hope and empowerment in being able to control it. The wait is over and stress and anxiety is relieved. For some, it is a relief. For others, it is bittersweet. And for some, testing does have its limitations and isn't perfect. Not all causes of hereditary cancer can be detected and though a negative result is extremely helpful when there is a known mutation in the family (thus being a true negative,) there is always the fear the negative may not truly mean "negative" in the absence of a family mutation. In that case, the uncertainty will continue to exist, however if one meets the criteria for Lynch syndrome, they can and should receive annual screenings for cancer, the same as an individual who has been diagnosed with a known mutation. Finally, testing has not fully evolved and there are other genes out there that have yet to be discovered, as well as variants continuing to be discovered. So, dependent upon your family history, your needs and understanding of genetic testing, its important to speak with your genetic counselor and your health care provider to determine if testing is good for you and for your family.     According to the National Cancer Institute, general population studies have indicated the majority of individuals, internationally, are not adverse to genetic testing for hereditary cancers but more concerned as to whether or not treatment for the hereditary condition would be available. For resources where to obtain low cost or no cost treatment for those without insurance, view the link marked "Support" to your left and scroll down to the country or state in which you reside. Study results also indicate a primary motivation for individuals submitting to genetic testing is a concern and a desire to provide protection for their children and loved ones, as well as the ability to reasonably determine for themselves what could occur in the future-- in order to make decisions as whether or not to bear children, engage in certain occupations, determine where to reside and in making other major lifestyle choices. With enhanced surveillance and known successful treatment methods, hope has never been greater than it is today, for individuals with Lynch syndrome and with genetic testing, individuals have all the tools they need for an enhanced quality of life. To learn more about whether or not one is at risk, MD Anderson has an excellent overview available.   MSI/IHC TESTING The microsatellite instability (MSI) test and the IHC test are pathology procedures performed upon the tissue of a colorectal or endometrial tumor, from an individual who has already contracted cancer. These tests are conducted to determine if the tumor has specific characteristics known to Lynch syndrome tumors and can identify specific genes which may suggest the possibility of Lynch syndrome. Genetic testing is then recommended if a possibility of the existence of the Lynch syndrome occurs. Several top research institutions in the United States have determined pathological testing of colon cancer tumors to be cost effective. There are many institutions testing every colon tumor with the above testing process. Many experts recommend this process and there are many that also recommend the testing of all endometrial cancer tumors, as well.   QUICK FACTS Approximately 10% of all cancers are hereditary. Approximately 145,000 people per year get colon cancer and approximately one in every 35, have Lynch syndrome. It is estimated by Johns Hopkins that 600,000 individuals, within the United States, are projected to have Lynch syndrome, however less than 5% of that number have been diagnosed. Other institutions estimate the number of those thought to be affected to be much higher. The only true form of diagnosis of Lynch syndrome is through genetic testing. Genetic testing saves lives.   LYNCH CANCERS LIFETIME RISK Colon Cancer - Up to 80% General Population 2% Endometrial Cancer - Up to 60% General Population 1% Stomach - Up to 13% General Population - 1% Ovarian - Up to 12% General Population 1% Those diagnosed with Lynch syndrome have a slightly elevated risk over the general population of developing cancers of the kidney/urinary tract, brain, small intestine, cervix, liver, bladder, ureter, esophagus, small bowel, pancreas, hepatobiliary tract, prostate, gall bladder duct, may contract sebaceous adenomas (skin cancers - Muir Torre) and cancer of the brain. There are also lessor known cancers which have been discovered during research studies and thought to be as a result of the Lynch syndrome, such as sarcomas, adrenal gland tumors, thyroid tumors and other cancers.  Certain subsets of Lynch syndrome are known to present a high risk of breast cancer to individuals. If your family has a history of these cancers, be certain to document the specifics and speak with your physician.   THE GENETIC COUNSELOR The genetic counselor plays an important role in the lives of those with Lynch syndrome. Having considerable education and knowledge of genetic conditions, they can provide us with an explanation of how and why we are at risk for Lynch syndrome as well as provide information on risk to our families. Genetics is complicated and with a syndrome that possesses over 1100 variants, as Lynch syndrome, it is important to provide your physician with all the information you can find on your family history. The physician will assess it and most likely refer you to a genetic counselor. Genetic counselors are few and far between and there are far too many of them for the numbers of individuals who are now being screened for genetic conditions. Advocacy needs to stand up and encourage public awareness of the occupation and recruitment into schools that offer a Masters program in genetic counseling. As well, advocacy needs to lobby for financial assistance to obtain more genetic counselors so individuals can take advantage of the opportunities and benefits they offer. Finding a genetic counselor in small states or rural areas may be difficult. In that situation, hopefully, the physician will take advantage of the services which are offered by the many excellent genetic counselors offered as a service by commercial testing laboratories or refer the patient to the services of telephonic genetic counseling. If you have difficulty finding a genetic counselor who can provide services within a reasonable amount of time, please call us at 707-689-5089 and we will be more than happy to assist with attempting to find effective, timely, genetic testing services. However, bottom line is genetic counseling should be a choice of the individual and not a requirement of the insurance company or the health institution which is administering the test.  No person should be required to attend a separate session, as a percursor appointment to obtain a test which can detect a life threatening condition.  Rather than ignore mandatory attendance with genetic counseling and forego genetic testing, give us a call and let us know so we may be able to assist in finding alternative methods of testing which may be within your own realm of comfort.   Genetic testing provides us with the knowledge to make effective decisions for ourselves and our families in the future. Knowledge is power. If we know we are at high risk for for a myriad of cancers, which may very well adversely affect us and our children in the future, we have the ability to attempt to protect ourselves.     HOW TO LOCATE A GENETIC COUNSELOR: National Society of Genetic Counselors GeneClinics American Society of Human Genetics Genetic Alliance   Modified 5/24/2013
Monday, 15 February 2010 | 32154 hits
129. Kuwait
KUWAIT     Genatak is now facilitating genetic testing for the MSH-1, MSH2, MSH-6 and long pcr for the PMS2 genes for Lynch syndrome as well as conduct pre-test and post-test counseling. They serve Kuwait, Saudi Arabia, Oman, the UAE, Bahrain and Qatar.   Eastern Biotech Genetic Testing and Counseling MSH-1, MSH-2  
Wednesday, 15 August 2012 | 1489 hits
SAUDI ARABIA     Genatak is now providing genetic testing for MSH1, MSH2, MSH6 and long pcr for PMS2.  They also service the areas of Kuait, Oman, Bahrain, the UAE and Quatar.   Eastern Biotech Genetic Testing and Counseling MSH1  MSH2  
Monday, 06 August 2012 | 1352 hits

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