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WELCOME TO THE LSI LIBRARY!
Offering a host of resources on Lynch syndrome.
EGAPP Recommendations Translation Updated July, 2012
Revised Bethesda Criteria, 2004
Amsterdam II Criteria
American College of Gastroenterology Guidelines February 2009
AGA Guidelines for Colorectal Cancer March 2008
Guidelines Tor The Clinical Management Of Lynch Syndrome by Dr. Hans Vasen 2007
Society of Gynecological Oncologists 2007 (More detailed information)
Practice Parameters of Patients with Dominantly Inherited Colon Cancer the American Society of Colon and Rectal Surgeons 2003 Update 2006
Genetic Counseling Considerations In the Evaluation of Families for Lynch Syndrome-A Review - Journal of Genetic Counseling, National Society of Genetic Counselors, Inc. 2010
NCCN Guidelines - Need to Register To Obtain Access
NCHPEG Tools and Guide PDFs 2013
CLINICAL TRIALS AND REGISTRIES
One of the greatest ways we could it pay forward in appreciation for everything those who have cared for us have done in order to enhance our quality of life is to enroll in Cancer Registries and Clinical Trials so future generations may continue to protect their families and save lives.
Please become involved in these activities as they are the most important lifesaving measures taken today.
Lynch Syndrome CAPP3 Aspirin Study, Preparing to Recruit 3,000 Individuals To Determine Daily Dose of Aspirin to Reduce Lynch Syndrome Tumors In Those With Lynch Syndrome. Register Now for Study Information Once Study Is Released. Physician Information and Recruitment.
Johns Hopkins, Clinical Trial PD-1, MK3475, For Patients With Microsatellite Unstable Tumors. Contact Dung, Le, Primary Investigator
National Institute of Health Clinical Trials - Includes Not Yet Recruiting, Recruiting, In Process and Completed Trials for Lynch Syndrome.
Study by Ohio State University for Cryopreservation of Eggs For Women Undergoing Treatments or Surgeries Which May Affect Fertility
Study by Helen and Harry Gray Cancer Center at Hartford Hospital (Connecticut) regarding Hyperbaric Oxygen and Ability to Improve Erectile Function Following Surgery for Prostate Cancer
Massachusetts General Hospital - Preoperative Staging of Pancreatic Cancer Using Super Paramagnetic Iron Oxide Magnetic Reasonance Imaging
Pfizer, Institut National du Cancer (France)- Biological, Pathological and Imagery Markers In The First Line Treatment Of Metastatic Clear Cell Renal Cell Carcinoma
Axo-Gen, Vanderbilt Ingram Cancer Center, Nashville, TN Nerve Reconstruction In Individuals Using Avance In Subjects Who Undergo Robotic Assisted Prostatectomy For Treatment of Prostate Cancer
Eisai, MD Anderson, Houston, TX - Dalteparin for Venous Thromboembolism (VTE) Prophylaxis in Pancreatic Cancer Patients
European Association for Endoscopic Surgery (Italy) - Transanal Endoscopic Microsurgery vs. Endoscopic Submucosal Dissection For Large Rectal Adenomas
Hospital Donostaia, San Sebastian, Spain Study to Evaluate the Efficacy of Pravastatin on Survival and Recurrence of Advanced Gastroesophageal Cancer
Gifu, Japan - Republic of Korea Comparing Covered Self-expandable Metallic Stent (SEMS) Above/Across the Sphincter of Oddi
Seoul National University Hospital - Cyclooxygenase-2 Inhibitor for Adjuvant Anticancer Effect in Patients With Biliary-pancreas Cancer
Universitaetsspital-Basel - Influence of N-Acetylcysteine on Morbidity, Oxygenation and Cytokine Levels in Partial or Total Esophagectomy for Cancer
Santa Clara Valley Medical Center, San Jose, CA. Bowel Preparation for Inpatient Colonoscopy
Novartis - Germany An Open Label, Single Arm Trial to Characterize Patients With Metastatic Renal Cell Carcinoma Treated With Everolimus After Failure of the First VEGF-targeted Therapy (MARC-2
Medical Center of Fudan University - Shanghai New Adjuvant Chemotherapy of Non Resectable Liver Metastasis of Colorectal Cancer Without Bleeding, Obstruction
David C. Pratt Cancer Center at St. Johns Mercy, St. Louis, Missouri Stereotactic Body Radiotherapy for Unresectable Pancreatic Cancer - Stereotactic Body Radiotherapy for Liver Tumors, Stereotactic Body Radiotherapy for Prostate Cancer
Bayer Corporation Study to Observe Safety and Efficacy of Nexavar in Treatment of Kidney Cancer
Buenos Aires, Argentina Epoetin Alfa (Hemax®) Phase IV Study in Chemotherapy Induced Anemia
West China Hospital at Sichuan University Effective Study of Preoperative Short-course Radiotherapy for the Advanced Resectable Rectal Cancer
Daniel Stephen Engeler Safety Study of Bipolar Versus Monopolar Transurethral Resection of Bladder Tumors
Case Comprehensive Cancer Center and the Medicis Pharmaceutical Company: Forehead Scars Following Mohs Micrographic Surgery and Reconstruction for Skin Cancer
Myriad Genetics-Various U.S. Locations Study Comparing Optimized 5-FU Dosing and Standard Dosing in Metastatic Colorectal Cancer Patients Treated With mFOLFOX6
Odense University Hospital - Denmark CUP Project PET/CT Applied Early In the Work Up For Metastasizing Of An Unknown Primary Tumor
Mayo Clinic, Jacksonville, Florida
Improving Complete Endoscopic Mucosal Resection (EMR) of Colorectal Neoplasia
Bristol-Myers Squibb First-Line Gemcitabine, Cisplatin + Ipilimumab for Metastatic Urothelial Carcinoma
Novartis - Memorial Sloan Kettering BKM120 in Metastatic Transitional Cell Carcinoma of the Urothelium
Glaxo-Smith-Klein Memorial Sloan Kettering Gemcitabine and Pazopanib in Chemotherapy Naïve Patients With Advanced/Metastatic Urothelial Carcinoma Ineligible for Cisplatin-based Chemotherapy
ImClone Study of Ramucirumab or IMC-18F1 With Docetaxel or Docetaxel Alone as Second-Line Therapy in Participants With Bladder,Urethra, Ureter, or Renal Pelvis Carcinoma
Sanofi- Aventus European Organization of Research and Treatment for Cancer. Efficacy of FOLFOX Verus FOLFOX plus Afibercept in K-ras Mutant Patients with Resectable Liver Metastases (BOS3)
LECTURE AND POWER POINT PRESENTATIONS
Power Point Presentation by Dr. Hans Vasen and Dr. Patrick Lynch, Presented At the Insight Conference
Power Point Presentation by Dr. Henry T. Lynch, MD and Jane T. Lynch, BSN The Extraintestinal Cancers of Lynch Syndrome
Power Point Presentation on MSI - IHC Pathological Tumor Testing
Epidemiology of Colon Cancer, Presented to the San Diego Academy of Family Physicians 11/14/2009
UC San Francisco 2009 Slides MSI Basics for Pathologists - Grener
The Power of Sustainable Changes in Diet and Lifestyle by Dean Ornish, M.D., founder and president of the nonprofit Preventive Medicine Research Institute in Sausalito, California. (A one hour plus program courtesy of MD Anderson Cancer Center.)
Lynch Syndrome: Diagnosis and Screening in 2008 Heather Hampel, MS, GCG; Wendy Frankel, MD; Jonathan Terdiman, MD; Roger C. Haggitt Gastrointestinal Pathology Society Session - May 18, 2008
ASCO Article Outlining Study of Taking Effective Family Histories
CME ACCREDITED CLASSES
Free CME Credits and Classes Through NCHPEG and the AMA - Colorectal Cancer, Is Your Patient At High Risk?
Genetics Cancer Review - Expires 2014 ASCO 1.5 CME Credits $25 - $32
Preimplantation Genetic Testing - Expires 2014 (Cleveland Clinic)
Harvard Medical School: Genetics - Colon Cancer Expires 7/6/2013
CME Genetics: Colon Cancer (Expires 6/17/2012) One hour course, 1 CME, intended to teach indiviudals to identify those with Lynch syndrome as well as discusses screening recommendations. Cost: $20
CME Activity: The Lynch Syndrome Up to date education accredited by the American College of Physicians with faculty involving top experts in Lynch syndrome. Expires 7/19/2013 $260 for one year.
American Medical Association - Identifying and Managing Hereditary Cancer Risk
Genomic Medicine - Family History 1 Credit, Cost $5
Genomic Medicine - Colorectal Cancer
Medscape CME Metastatic Colorectal Cancer Tumor Board (oncologists, surgeons, gastroenterologists, radiologists, interventional radiologists, nurses, pharmacists, and other healthcare professionals who treat and care for patients with advanced/metastatic colorectal cancer.)
Cerebral primitive neuroectodermal tumor in an adult with a heterozygous MSH2 mutation Alexander F. Jeans, Ian Frayling, Bharat Jasani, Lucy Side, Claire Blesing & Olaf Ansorge
Oncologic Issues through Audio Digest Foundation 1 CME Credit
National Center for Biotechnology Information (NCBI) Gene Tests - information on anything and everything that is happening with Lynch syndrome research and technology.
Gene Reviews - Hereditary Non-Polyposis Colon Cancer, an excellent, comprehensive resource compiled by Dr. S. Gruber and Wendy Kohmnan, MS of the Cancer Genetics Clinic, Michigan State University, Ann Arbor, Michigan.
Guidelines for the Clinical Management of Lynch Syndrome by Dr H F A Vasen Department of Gastroenterology, Leiden University Medical Centre and The Netherlands Foundation for the Detection of Hereditary Tumours
, 6116 Executive Boulevard, Bethesda, Maryland 800-422-6347 Psychosocial Issues in Hereditary Colon Cancer Syndromes