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Living With Lynch Syndrome Day - Mayo Clinic - 9/14/2013

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It is that time again!  The Annual Mayo Clinic Living With Lynch Syndrome Day, September, 14, 2013, Bloomington, MN. ---

 
Sponsored by the Minnesota Association of Genetic Counselors, Minnesota Oncology, Myriad Genetics, Lynch Syndrome International and Get Your Rear In Gear....

Fifth Annual Living with Lynch Syndrome Conference

 
For those of you making travel plans, here are some details:

Location: Minneapolis Airport Marriott ($95 rooms available Friday and Saturday nights when you book before August 23 and indicate you are attending the Lynch syndrome conference)

http://www.marriott.com/hotels/travel/mspmn-minneapolis-airport-marriott/ 

2020 American Blvd E Minneapolis, MN 55425

Ph: (952) 854-7441

A website for registration will be available after 8/12 to register. Conference fee is $25 per person.

Program Schedule: Saturday, September 14, 2013

Location:  Minneapolis Airport Marriott
2020 American Boulevard East
Bloomington, Minnesota 55425 USA
952-854-7441
http://www.marriott.com/hotels/travel/mspmn-minneapolis-airport-marriott/

8:30 a.m. Continental Breakfast Meet & Greet (optional)

9:00 a.m. Welcome and Introductions
Carrie Zabel, MS, CGC
Myriad Genetic Laboratories, Inc.
Laying a Foundation – Lynch Syndrome Basics

9:15 a.m. Lynch Syndrome Primer and Guideline Updates
McKinsey Goodenberger, MS, CGC
Mayo Clinic Department of Medical Genetics
Underlying biology, terminology, cancer risks, inheritance patterns and general screening recommendations.
Building on the Basics – Reducing Cancer Risk

9:45 a.m. Colorectal Cancer Screening and Surgery
Lisa A. Boardman, MD
Mayo Clinic Division of Gastroenterology and Hepatology
A discussion of basic and advanced issues relevant to colonoscopy, from how your preparation influences the quality of the procedure to evolving techniques for optimal visualization, the progress of alternative methods to traditional screening and a review of alternatives for surgical management of individuals diagnosed with colon cancer in the setting of Lynch syndrome. 

10:30 a.m. Gynecologic Screening and Surgical Options for Women with Lynch Syndrome
Myra Wick, MD, PhD
Mayo Clinic Department of Obstetrics & Gynecology
Mayo Clinic Department of Medical Genetics
Review of both screening and preventive surgical options for women with Lynch syndrome including risks, benefits, and future implications on health.

11:00 a.m. None of the Above, All of the Above: “Other” Lynch-associated Cancers
Shari Baldinger, MS, CGC
Virginia Piper Cancer Institute – Allina Health
Overview of other cancers prevalent in Lynch syndrome families and a review of medical management options. 

11:30 a.m. Parallel Experiences: Finding Common Ground
A panel of individuals diagnosed with Lynch syndrome will share their experiences. What are the burdens, blessings and most significant challenges? How do points of view vary among families and family members? Hear how Lynch syndrome has impacted the lives of others.

Beyond the Basics – Recent Advances and Future Directions

12:00 p.m. Lunch

12:30 p.m. Update on Lynch Syndrome
Noralane M. Lindor, MD
Mayo Clinic Arizona Department of Health Science Research
Participants will learn about emerging new discoveries relevant to Lynch syndrome.

Delving Deeper – Selected Topics

1:05 p.m. Break-Out Sessions: Selected Topics on Lynch Syndrome

Choose up to (4) of the following sessions:
Gaining Control and Improving Attitudes

Effective Communication with Health Care Providers

Family Communication

Sexuality Concerns for Women Post-Hysterectomy

Nutrition and Health 

Advocacy

Cancer Survivor Support Group

Caregiver Support Group

Previvor Support Group

3:40 p.m. Privacy and Insurance Discrimination
Kathleen Meyerle, JD
Mayo Clinic Legal Department
A review of privacy and insurance concerns for individuals with genetic conditions. 

4:00 p.m. That Henry Lynch
Anna Leininger, MS, CGC
Minnesota Oncology
An introduction to the man behind the name. 

4:10 p.m. Living with Lynch Syndrome
Henry Lynch, MD, PhD
Chair, Department of Preventive Medicine
Professor of Medicine
Creighton University School of Medicine

5:00 p.m. Adjourn

*Program is subject to change
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