Kudos to the European Group (Mallorca Group) for their revised set of guidelines for those with the Lynch syndrome. While the U.S. guidelines were decreased significantly, during a meeting of the NCCN Committee this year, the Mallorca Group considered many aspects, reviewed scientific evidence and increased the level of surveillance for those affected by LS.
The report was written in an organized and in an easily understandable manner, offering additional guidance to medical professionals in conducting screening management protocols.
In the meantime, many of us are shaking our heads and wondering what occurred this year with the Committee of the National Comprehensive Cancer Center Network in writing their guidelines. We haven't a clue, as only one member of the Committee spoke with our advocates who were present, therefore, our voice and input wasn't considered.
While the Europeans offered more in screening tests and a tighter schedule in screening intervals, the NCCN took an entirely different approach, increasing the interval between screening for colorectal cancer and decreasing screening suggestions for extracolonic cancers. To further complicate screening protocols for medical professionals, they added a complicated differentiation in screening intervals and ages to begin screening between those affected by defects in the MSH6 and PMS2 genes, and those affected by the MSH2 and MSH6 genes.
This approach is interesting especially in the recent revelation that NCCN facilities nationwide are sorely deficient in the diagnoses of Lynch syndrome in comparison to their Community Hospital and Clinic counterparts and their European counterparts.
We appreciate the guidance offered to medical professionals for suggested screening for women and women's cancers, addressed by the European Group (Mallorca Group) and the consideration for screening other extracolonic cancers of the Lynch syndrome, as it brings hope to a population which is in desperate need of consideration from the medical community.
Hopefully, the NCCN Committee will learn something from their European counterparts...we certainly hope so in light of this year's guidelines.
To gain access to the Guidelines:
European Group - Mallorca Group Simply tap on the link: http://gut.bmj.com/content/62/6/812.full
NCCN: Click on the link, register, click on Colorectal Cancer Guidelines, Scroll Down to Hereditary Cancer Guidelines www.NCCN.org