Update To Mandatory Conditions Of Genetic Testing
7/26/2013 We spoke with an office of individuals in Boston, Massachusetts, involved with InformedDNA today, and who are financing the venture to MANDATE pre and post genetic counseling as a condition to receiving lifesaving genetic testing services through Cigna Insurance. This not only removes personal choice of provider or delivery of services, but would make our families responsible for co-pays for each service. In requesting the name of a responsible party to speak with to deliver the patient perspective, we were refused.
"We are all responsible," the management representative stated, refusing to give a name and for the fourth time in two days insisted on provision of a phone number. We advised we had given it several times previously and nobody called back. We told her it was important we speak with someone of responsibility as our families were dying. She responded with, "If you have a medical emergency, we suggest you call 911."
We have a valid concern about the lack of sensitivity to individuals with hereditary conditions from this organization and are concerned whether or not they will be able to furnish the services in a warm and supportive manner, as previously received by medical professionals within our local communities and local community genetic counselors. We are very strongly concerned when they refuse to listen to a patient voice.
We are very concerned about Cigna's mandated policies, without providing choices to patients. We are very concerned about what we perceive as discrimination in being targeted for MANDATED counseling, of ALL the genetic disorders in existance. This isn't about benefit for the patient...clearly, with the response from the individuals involved in the "for profit" genetic counseling corporation, there isn't a consideration for the families. It is all about money...
The company was advised we intended to share this information with those involved with hereditary cancer care.