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U.S. NATIONAL SUPPORT AND RESOURCES

 

We are in the process of developing all the support and treatment resources available, throughout the world, for individuals at high risk for Lynch cancers. The biggest fear for individuals with Lynch syndrome is whether or not there will be accessibility to surveillance testing, as well as treatment in the event one were to contract a cancer.

Each and every state within the U.S. offers affordable health care for those persons who are rejected from health insurance companies for possessing a preexisting condition.  Administered by individual states and the Federal Government, this program is known as the Affordable Health Act.

As well, Our goal?  No more survivors and hundreds of thousands of previvors until a cure can be found. Together we will make a difference.

Any and all resources listed upon any page within this website are not an endorsement of Lynch Syndrome International nor a recommendation of specific organizations, company, corporation, manufacturer, health care provider, product, institutions or facilities by Lynch Syndrome International.  By listing resources under our "Support Page," Lynch Syndrome International is merely providing a road map for individuals to follow in their search for healthcare and cancer related services.

 

Medicaid is a federal healthcare program administered by individual states.  The states are authorized to cover colon cancer screening but has the autonomy to decide what kind of screening it will cover and under what circumstances.  A federal website (govbenefits.gov) can help you find and determine your eligibility for state-administered programs like Medicaid.

The CDC (Center for Disease Control) offers a program entitled "Screening For Life."  This program reimburses local public health agencies for cancer screening.  Be certain and ask your local health agency if they participate and if you qualify.

The National Financial Resources Guidebook for Patients by the Patient Advocate Foundation, provides a thorough comprehensive list of resources, state by state, for those in need of financial resources to obtain diagnostic testing, treatment and ongoing surveillance.

 

Information:

Oconolink:  University of Pennsylvania

National Cancer Institute

Learn More About Colorectal Cancer Through Med Link (In Many Different Languages)

National Library of Medicine (Medline)

Cancer Prevention and Control

National Institute of Health

National Human Genome Research Institute (NHGRI)

U.S. Department of Labor Employee Benefits, Employee Guide to Health Benefits Under Cobra

The Cancer Project Education and Guidance For Dietary Issues And Cancer Prevention

Oncofertility Consortium

 

Organizations Offering Assistance, Including Co-Pays and Financial Assistance

African Women's Cancer Association

American Cancer Society

American Indian Cancer Foundation

Black Women's Health Imperative

Brenda Mehling Cancer Fund - Assistance For Ages 18-40

Bridge of Blessings - Financial Assistance for Women With Ovarian Cancer

Bureau of Primary Health Care

CancerCare  Financial Assistance for Cancer Related Costs  Assistance with Co Payments for Chemotherapy and Medicines

Cancer CoPayment Assistance Foundation

Cancer Financial Assistance Coalition

Cancer Service Directory through the National Cancer Institute

Cancer Survivors Fund  For young adults, assistance for scholarships and prosthetics

Cancer Treatment Center Search through the American Cancer Society

American Childhood Cancer Association

Cheap Colonoscopies.com  ColonoscopyAssist ($950 colonoscopies, nationwide)

Chronic Disease Fund (Good Days)

Clinical Center (NIH) Guide to Governmental Cancer Trials

Colon Cancer Alliance

Co-Pay Relief

Cure Search

Department of Veterans Affairs This email address is being protected from spambots. You need JavaScript enabled to view it.

Fertile Hope (Livestrong Fertility Resources)  Conduit to the Sharing Hope program which offers financial resources for reproductivity

Free Clinic Nationwide Search

Financial Help For People With Cancer

Find a Gastroenterologist (AGA Referrals)

Find a Gynecologic Oncologist

GARD Genetic and Rare Diseases Information Center

Genetic Testing Laboratories through Genetests

Healthwell Foundation

Hill-Burton Funded Healthcare Certain hospitals receive federal funding to provide services to individuals who are low income and do not have the means to pay for their own health care

Johnson and Johnson Patient Assistance Foundation

American Kidney Fund

Low Cost HRSA Health Care (Locations Throughout the US)

Insure Kids Now Program

Lance Armstrong Cancer Financial Assistance

Liddy Shriver Sarcoma Initiative  Support and Financial Help

Low Cost Colonoscopies

Medicaid

Medicare Colorectal Cancer Screening Program

Myriad Genetics Financial Program

http://www.mylifeline.org/ Free Websites for Cancer Survivors, Caretakers and Families

National Brain Tumor Society

National Coalition for Cancer Survivorship

National Collegiate Foundation - Provides Financial Assistance to Young Survivors Attending College National Council on Aging

NTAF  (Fundraising Assistance and Support for Transplant and Catastrophic Injury) 800-642-8399

National Financial Resources Guidebook for Patients

National Organization for Rare Disorders - Assistance Program

Nativve American Cancer Research  - Providers Financial Resources And Navigates Native Americans Through Resources

NCI Designated Cancer Centers

Needy Meds.org

Netwish Provides general financial help

NIH Clinical Studies Assistance

NORDS Patience Assistance Programs

Office Of Minority Health

Office of Rare Diseases

Pallative Care Program Search

Partnership for Prescription Assistance

Patient Access Network Foundation

Patient Advocate Foundation

Patient Services Incorporated  

Resolve (Assistance with Fertility Treatment)

RX Access Card

State and Local Health Departments

Sam Fund (For Young Adults)

States That Require Health Plans To Pay For Clinical Trials

Team Cantinuum   Patient Grants and Loans

The C.H.A.I.N Fund Inc.  Co-pays, Subsistence, Assistance While Fighting Cancer

Tricare Service Directory (for military members)

Veterans Administration Care Locations

Veterans Administration Cancer Program

2-1-1 Services

Prevent Cancer Foundation - Funds Research on prevention, educates on prevention, resources

 

Services For Underserved Persons

 

Avoncare provides financial medical assistance to medically underserved women.

Native American Cancer Research

PThis email address is being protected from spambots. You need JavaScript enabled to view it. - Hispanic Latino Outreach Program

Viva Bien Aprenda Como Spanish Website

National Institutes of Health Spanish Hotline  301-592-8573

Teens Living With Cancer -Support in Spanish for Teens with cancer

PAF's Scholarships for Survivors Program (for young adults)

This email address is being protected from spambots. You need JavaScript enabled to view it. (For young adults with cancer)  Websiite

Luzca Bien...Sientase Mejor (Look Good...Feel Better)  Spanish

My Oncofertility.org (Spanish)

Look Good...Feel Better for Teens  800-395-LOOK

Camp Kesem for kids and teens whose parents have cancer, California

Cancer and Careers (Spanish and English) career coaching, education, resources toward employees with cancer

 

For Young Adults Living With Cancer

I'm Too Young For This

massKickers

LIVESTRONG Young Adult Alliance

Single Jingles: A Testicular Cancer Foundation

Imerman Angels

First Descents

Joan's Fund

Break Cancer

Nanny Angel Network

MyLifeline.org

Sharsheret

Camp Mak-A-Dream  medically supervised, cost-free Montana experience, in an intimate community setting, for children, young adults and families affected by cancer.

MyOncolfertility.org

Make A Wish Foundation

 

How To Find A Gynecological Oncologist-Gynecologic Cancer Foundation

 

Tips for Finding Financial Assistance

 

 

The Desk.Info Roadmap Into Government Assistance

 

 

National Cancer Institute

The American Cancer Society is a godsend to those of us who have sustained Lynch cancers.  They are available to help with almost anything a survivor needs from assistance with head coverings, to the provision of medical services, to providing a warm compassionate person to listen to an anonymous, frightened voice and even transportation to medical appointments.  Do not hesitate to contact the American Cancer Society with your needs.

 

Financial Assistance for Medical and Genetic Testing:

 

The Federal Government subsidizes thousands of primary health clinics across the United States, known as HRSA Clinics.  These are listed with each individual state.  The thought is, if one does not have the financial means to obtain necessary screenings and treatment, these resources are always available.

The process would be to personally see a primary care provider at one of these facilities, advise him/her of the high risk to Lynch syndrome by providing evidence of a family history of Lynch cancers or evidence of a direct relationship with a family member with a diagnosed Lynch syndrome mutation and have him/her prescribe genetic counseling and testing for Lynch syndrome, or provide evidence of possessing a Lynch syndrome mutation and requesting the general practitioner refer you to a facility for ordered surveillance testing.

As well, the NCI finances hospital cancer programs throughout the United States.  These NCI hospitals and facilities are also listed beneath each state in which they are located, as they provide low cost/no cost health care for those who are in need and who are eligible.

 

Prescription Assistance

The National Cancer Institute

Adria Patient Assistance Plan 614-764-8000

Bristol-Meyers Indigent Patient Assistance Program  812-429-5000  Provides Cytoxan to patients with financial need

ICI Pharmaceutical Novaldex (tamoxifen) Patient Assistance Program  1-800-456-5678  Provides tamoxifen to patients with financial need.

Partnership for Prescription Assistance (PPA)  1-888-477-2669

Searle Pharmaceutical Company provides certain medicines to enrolled physicians.  Any physician may enrolled.  The physician is provided coupons to be redeemed for medicines by qualified patients 1-800-542-2526

Genentech - Patient Assistance Program provides financial help for cancer patients.

Needymeds - a website operated by a physician, a social worker and volunteers offering information regarding financial assistance for pharmaceuticals.

RXHope.com Complete List of Pharmaceutical Assistance by Name of Company

 

Air Transportation: (Free or Low Cost Airfare to Treatment for Those In Need)

 

New Directions for people with disabilities, inc. is a 501(c)(3) non-profit organization providing high quality local, national, and international travel vacations and holiday programs for people with mild to moderate developmental disabilities.

The National Patient Travel HELPLINE provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network.

Patient AirLift Services arranges free air transportation based on need to individuals requiring medical care and for other humanitarian purposes.

TSA Cares is a helpline to assist travelers with disabilities and medical conditions. TSA recommends that passengers call 72 hours ahead of travel to for information about what to expect during screening.

 

Angel Med Flights, Scottsdale, Arizona (Worldwide)

Mission Air Transportation Network (Canada) 416-924-9333

Corporate Angel Network, Inc. White Plains NY  Corporate Aircraft free air transportation  914-328-1313

Airlifeline(USA) 800-446-1231  free air transportation for those in need of medical treatment who cannot afford commercial travel.

Mercy Medical Airlift

Air Charity Network

Air Care Alliance

Edward J. Safra Family Lodge at the NIH - Lodging while getting treatment at the NIH

Angel Flight at the NIH

Angel Flights For Veterans Services (For military families and veterans in need)

Air Ambulance Anywhere

Air Compassion America

National Patient Travel Hotline

National Patient Air Transport HELPLINE

 

 

Lodging During Treatment

 

Joe's House Lodging Guide for Cancer Patients

Homes That Help and Heal

Hope Lodge - Operated by the American Cancer Society

Hospitality Homes provides temporary housing in volunteer host homes and other donated accommodations for families and friends of patients seeking care at Boston-area medical centers.

The National Association of Hospital Hospitality Houses supports homes that help and heal to be more effective in their service to patients and families.

Ronald McDonald House Charities

 

Groceries, Cosmetic Care and Subsistence

  •  
  • Angel Food Ministries Provides food assistance in 32 states
  • Low Income Home Energy Assistance Program -If you have difficulties paying for your utilities, LIHEAP may be able to assist you with bill payments, an energy crisis, and weatherization and energy-related home repairs. To apply, call the National Energy Assistance Referral (NEAR) project toll-free at the number provided to get the contact information for your local LIHEAP office. (Click on name for hyperlink contact)
  • Society of St. Vincent de Paul Provides various services to people in need, including food programs, emergency financial assistance, emergency transportation, rent/mortgage assistance, free pharmacy services, budget counseling, referral services, and more.  Link is to local councils and contact the local council for assistance.
  • Assistance with General Living Expenses - Enter Zip Code for Resources in your Local Area
  • Brenda Mehling Cancer Fund provides financial assistance for patients ages 18-40 who are going through cancer treatment. Grants are awarded to cover co-payments, rent/mortgage, transportation, car insurance, repairs, and groceries.
  • Angel Food Ministries Operates in 32 states providing food relief
  • Blue Note Fund by the Colon Cancer Alliance
  • Team Continium Provides Assistance with Utilies and Day to Day Expenses
  • Road To Recovery - ACS program providing transportation to and from treatment

 

Health Insurance Resources Including High Risk Insurance Through States

 

 

 

Legal Information and Referrals:

 

Support

 

 

 

 

 

Revised 7/11/2013